Once again i have had so many different problems with my health my mind has been so occupied i had forgotten to update my blog. Again i have been having problems whilst walking with pains up both of my legs. i have had numerous chest pains from the nerve in my neck, the hiatus hernia and now suspected angina which i am still unconvinced i have. Not to mention the early morning wake up calls from the beast and the cluster attacks i get on a regular basis. We have managed to get the number attacks down by half over the last 5 years of treatment but i am still no averaging between 2 and 4 attacks each day with only 2 or 3 days in a week staying attack free. Even though i do get attack free days unfortunately due to all the other issues i have going on they are no longer pain free days.
I am once again waiting for an appointment to try and investigate the pains in my legs and due to go for an MRI on my neck and spine for the trouble and pain in my neck ,left arm and chest. They have asked me to attend the x-ray clinic on Sunday morning so they can get the scan done and thankfully tomorrow i have my appointment with cardiology so we can check the angina and rule it out as i still feel its all down to the nerve that i am getting chest pains and pain down my left arm including numbness. When i get these pains its strange how all my energy drains out of my body and my heart rate increases o much it feels like its trying to burst out of my chest/ When i had an ECG at the doctors it showed an abnormality in the left atrium but i am not convinced its the heart or angina. Something tells me its all to do with the nerve damage or a trapped nerve in my neck and something is going on with the neck that is causing these very strange symptoms,
Its strange , but ever since i had the hiatus hernia weird things have been happening with my health. i am getting reoccurring infections, strange rashes and spots over my body and hands, oral thrush that keeps coming back even after intense treatment. Strange pains when i eat or drink not to mention my food and drink trapping all the time and almost choking me. Since the hernia started to play up and cause these problems i have watched my health go down hill rapidly and no matter how much i try and fight these things it just seems to make it worst. It makes me wonder if its not ALL caused from the hernia and side effects of ,medication i am on. As they do say the hernia can cause you to become allergic to things you have tolerated all of your life and make you react strangely to different medications. It would also make sense why none of the doctors seem to know what on earth is going on with me apart from the main illnesses that i have.
When i was told that i had a rare condition that there was no cure and very little treatment for and that i would have to learn to live with it for the rest of my life i never once thought i would be fighting all different types of health problems and i would be going through so much pain and anxiety all the time not knowing what on earth is going on with me. I try and keep a happy face and hide what i am going through with other people around me but there are times when i just wonder how much more of this can i take. if its not one thing its another and as soon as we start to get some answers something else comes along and throws a spanner in the works, so to speak. I just wish i could catch a break and finally know whats happening and get the treatment i need so i can at least live comfortable and live some kind of life. All that's happening at the moments is pain and more pain and constant struggle with my moods and depression due to all the things going on with me.
winter is now approaching quickly and i have to start preparing for the constant visits from the beast. the cold weather is when my CH condition becomes uncontrollable and at its worst. Constant attacks every day just from the cold and non stop pain and agony when moving around the flat. I am praying to god this year will be a mild winter so things wont become as bad as they have in previous years. At the moment i have noticed more attacks in the early hours due the temperature dropping between midnight and 4 in the morning. This temperature drop instantly triggers an attack and there is nothing i can do to avoid it. Also as winter comes so does more low pressure weather which in turn triggers my attacks i don't know why low pressure seems to be a trigger it must be something to do with the pressure on the brain and head. All i do know is during winter we get a lot more of them and that results in a lot of pain for me to deal with.
