Even though i have been getting less attacks than i usually get so far this year i am still struggling to cope with the early morning wake up calls from the beast. Every morning for the last 2 months i have been woken up at 2 am or 3 am with some massive attacks starting as soon as i open my eyes. I think having to sleep at an angle because of the hiatus hernia is aggravating the cluster attacks and making the morning one more regular due to lack of sleep and discomfort. I have tried laying flat for a couple of days to see if it helped but nothing changed and all that happened was i was wheezing as i breath due to the hernia blocking my airway and this kept waking me up every hour through the night. Thankfully i am due to see the doctor on Tuesday as i really need them to chase up the treatment for the hernia as now food and drink is trapping all the time and every day i am in agony with soreness and stinging pain in the chest. Every time i eat and drink and swallow it just traps there and i have to push on my chest hard for it top pass through and sometimes i have to massage it for a while as it can be stubborn and not let anything pass.
It has started to get worst over a period of time and if its ;left i think i will have problems eating and drinking permanently and it will eventually end up with me being unable to eat or drink anything and then i could be in real trouble. I had to cancel my last appointment with the Physiotherapist as i was in agony after doing the exercises that she gave me to help my neck and back as it just seemed to make my attacks worst. I started to get severe attacks during the day and they kept on returning so i ended up cutting the amount of exercises by half to see if it would help but still i was getting problems. I am due to see them again on Wednesday so they are gong to have to see if there is something else they can recommend as these exercises seem to cause me too much pain. Its bad enough i have to deal with pain every day anyway so i really don't need it being made any worst than it already is. Lets hope there is something else i can do to help me manage all the pain.
The rest of my treatment is on hold at the moment as there is nothing more they can do until this stupid hernia gets sorted out. A Hiatus Hernia is probably the worst kind and since i have had it all sorts of strange things have been going on. i have become allergic to things i have never been allergic to before. I have been getting severe chest pains and been rushed into hospital more than 5 times with them thinking i am having a heart attack and it turned out to be the hernia playing up and causing me pain. I have been getting strange rashes and sore eyes for no reason as though i have suddenly developed hay fever and my skin suddenly becomes bright red and sore for a short period for no reason at all. All this started when the hernia started and since then i have been living a nightmare. I am praying they will do something about it the next time they shove the camera down my throat to see if it has become worst or to see what else is going on.
The constant infections and oral thrush and fungal infections in the chest is really getting to me so i pray to god it will all soon get sorted. The trouble is over the last few years the hospitals have become so busy and understaffed its crazy waiting months and even years for any appointments or treatment so god only knows how long i will end up having to suffer. It took long enough to get my appointment with physiotherapy, it was just over a year and 3 months before i received the letter inviting me to call and book my assessment appointment and it was classed as urgent as i was referred whilst i was in hospital being treated for constant cluster attacks and severe neck pain. The last time i saw my neurologist they then sent me a letter instructing the doctor to expedite my appointment for the hernia so i will take that with me when i go to see the doctor on Tuesday and hopefully they can then get something arranged. Until then i just have to wait and suffer in silence.
