It doesn’t mater how many attacks i have have or for how long i will end up suffering from this condition, no matter what i will never get used to the level of pain it brings when having an attack. Again 3am this morning i was woken by the beast with yet another attack that lasted hours and ended up making me feel really ill all morning and it doesn’t matter if i take the injection to abort it as when it is this bad it even over powers the injections rendering them useless. I am hoping it is just down to the frosty morning we have been having and that it will improve again soon.
I am so used to having the attacks now i wake up expecting there to be pain and am shocked when i open my eyes and there is no attack within seconds of me waking up. Most of the time when i have an attack first thing in the morning i don't have to wake up as i am wide awake as soon as i open my eyes. There has been times where i have dreamt that the attack is starting and that has woken me up in time to take the injection and stop the worst of the attack hitting me before it over powers everything. It’s amazing how the body reacts and adapts when it has to get used to something like these attacks happening on a daily basis.
I have been keeping my flat at a warm temperature all day and all Night. I have been keeping the temperature in the 16 to 19 degree range so its not too hot and not chilly so it doesn’t effect my head and thankfully it has made a huge difference so far this winter. I know we are only at the beginning of winter but it seems to be stopping a lot of the attacks from appearing. I have noticed if i go out in the cold then it starts to play up as i feel the draft on the left side of the face. As the weather starts to get colder i will have to wear a scarf or something to protect my face so that the icy cold wind doesn’t set off any attacks.
My back is still causing me agony every now and again as the fatty lump at the left side of my spine seems to be pushing on nerves again. I wish they would just take the damb thing out but i am waiting to here on what they want to do. I have my appointment on Wednesday with my share care nurse, we will be able to discuss everything that has been happening to me this year and what plans we can make to try and improve things and get the treatment i need. I can’t really complain as they have been good to me but they just seem to take ages to make any appointments for you when you are in a lot of pain which seems a bit strange. Other than that my treatment from neurology has been amazing and if it wasn’t for them diagnosing me and getting me on the correct medication i just don’t know where i would be today.