Another early morning wake up call from the beast resulting in agonising pain lasting well over an hour this time. The pain was so strong it has left the entire left side of my face feeling sore and my neck feels like i have a golf ball stuck between the joints. Every time i try and move my head the neck feels like it is grinding and it causes me extra pain. No matter what i try to avoid the attacks in the mornings nothing seems to work. I decided to see if it was just the cold causing it and left the heating on quite high during the night but still the attacks appeared. Apart from having a restless night due to it being to warm there was no difference and when the early hours came so did the pain.
I have also noticed that the lump in my back has been causing me a lot of trouble whilst trying to sleep. Every time i roll in bed or move it starts to hurt. I am wondering if by making the top of my bed slant upwards, by putting pillows under it due to me now suffering from the hiatus hernia, if it is causing the back and neck to play up and hence the pain in the lower back where the lump is and the feeling of grinding in my neck. When i try and do something to ease one condition the other one plays up. Its just not fair any more.
When the specialist told me that this condition had no cure or treatment apart from strong medication and that i would have to learn to live with the condition i didn't expect all these other problems to arise and most of them have come about due to side effects from the medication i am already on. At least the injections work and the oxygen does help to half the length of time an attack can last but i still get the really bad attacks where nothing seems to help. OK i am grateful for the medication i am on and that the attacks have halved since they turned chronic but its still tough to live with.
I am due for an appointment with my specialist again at the end of this month so hopefully we will be able to take action to try and get the rest of the attacks under control and try and do something about the side effects that i am getting. I have noticed that since i started the Sodium that my dreams have turned into nightmares all the time resulting with me waking up in a panic and cold sweats most mornings. The trouble is this medication is the first since pregabilin that i can say actually worked for me and stopped some of the attacks so i don't really want to keep chopping and changing medication but as the specialist explained it can take a long time before we find the right combination of treatment to put the attacks into remission.
