Its starting to become very clear that i am not going to fix or get rid of the nerve problem i have in the neck not to mention the problems i am getting down the left side of my back. I was hoping that once i started treating the damaged nerves and learn to manage the pain it would get better and i would be able to cope with the problems but in fact the opposite is happening. It seems like the more time passes the worst the problems are becoming. I have now woken 3 times where i have though i had a stroke in my sleep and the entire left side of my body is dead and numb. Not being able to move half of your body when you wake up is very scary and when it takes a good 20 minuets to return the feeling its worrying.
This is not the worst thing that happens. The scariest thing of all is not when it goes dead but when the entire left side of my body including my head suddenly freezes. When i say freeze i mean frozen! Its as though someone has put the half of you inside a freezer and you feel like its icy cold and again numb. As the cold spreads slowly over the entire left side of the body you start to panic and start rubbing your limbs vigorously to try and warm then up and get feeling back but nothing seems to help you just have to wait until it returns on its own. Even though i know its only nerve damage that's causing it it doesn't really help to calm the situation.
I am grateful that the clusters seem to be staying low at the moment and despite the weather changing and the cold returning they seem to be staying at the rate i get through the summer which is great news so far. I am just praying as the freezing winter winds start that the head remains calm and behaves itself this. i know they will get a little worst as the winter chill begins but hopefully if i manage the pain like i am doing with the neck it shouldn't be too bad this year. One thing i have found is that by managing the neck and stretching the nerve when it feels stiff and using heat when its in pain it seems to have stopped triggering the clusters. I am now wondering if it was the damaged nerves in the neck that is responsible for turning my clusters from episodic to chronic.
The lump in my back on the lower left of my spine moved and started touching the spine and causing me even more problems and pain than i already get. The last thing i need now is something else to join in the constant torture but it has and now it looks like i have to have it removed. It was supposed to be happening the other week but there seems to be a complication so i am now waiting on some scans to come back and for the specialist to decide if its operable or not. The last thing i need right now is a another problem that they can't do anything about so am am praying they can this time. It seems to flare up and some days are really bad where i can't walk properly and other days i don't get much problem from it. When they did the initial scan to see what it was they told me it was a fatty lump. Now they don't seem to be so sure what it is. All i know is i need to get it sorted soon as i have been missing my fishing and have been unable to go out until i know whats happening. Fingers crossed it will all be sorted soon.
The lump in my back on the lower left of my spine moved and started touching the spine and causing me even more problems and pain than i already get. The last thing i need now is something else to join in the constant torture but it has and now it looks like i have to have it removed. It was supposed to be happening the other week but there seems to be a complication so i am now waiting on some scans to come back and for the specialist to decide if its operable or not. The last thing i need right now is a another problem that they can't do anything about so am am praying they can this time. It seems to flare up and some days are really bad where i can't walk properly and other days i don't get much problem from it. When they did the initial scan to see what it was they told me it was a fatty lump. Now they don't seem to be so sure what it is. All i know is i need to get it sorted soon as i have been missing my fishing and have been unable to go out until i know whats happening. Fingers crossed it will all be sorted soon.
