Well i finally got some answers as to why i am getting so much pain in my neck and down my back. This also includes problems walking and limbs going dead. I had my appointment with the spinal clinic and they explained the results of my MRI. They told me that there isnt actually any damage that they can repair or an illness that they can treat. What has happened is the nerves in the neck have become ultra sensitive due to the cluster attacks. He said its like turning up a volume control on a speaker once its turned up you can't turn it back down again. So now they have become ultra sensitive they will stay like that and there isn't much i can do about it.
The symptoms i am getting are wide spread so not really a big issue at the moment. If it does get worst then as a very last resort i can have an operation but there are huge risks with this type of operation so at the moments its not an option. I will have to learn to manage all the pains and problems on a daily basis and will continue to get these problems and pains from now on. I can get it to ease off a bit by exercise , massage, heat treatment and pain killers but i will get the days when its very bad and nothing much i can do about it. If it becomes completely unbearable and constant then we can try an injection directly into the nerves in the neck but again this has very high risks he told me and again i should hold off until it becomes a situation where i have no other choice.
The pains in the lower back are caused from the muscles around the nerves becoming sore because the nerves are inflamed. This is why i am getting lower back as well as pains in the upper area. He explained that the sharp pains down my left leg is again the nerve as the pain is travelling the full extent of the nerve when it plays up, this also explains the shooting pains down the arms and across the chest. As you can imagine i was quite shocked at the new and asked is there ANYTHING i can do to help myself or fix this problem. He told me there is no way of fixing it, and that i will no get this happening to me on and off for the rest of my life. Well I was speechless to say the least!
I now have to go back to my doctor and explain the problem i now have and let her know to expect a letter from him and to make sure i have plenty of pain relief available to me and creams to rub into the neck. I can't take very strong pain killers as i have been down that road before and ended up with massive issues that i am now paying for so i am going to have to learn a way of dealing with this problem with nothing more than paracetamol, ibuprofen gel and with the help of massage and heat i should be able to ease it off when it gets bad. When it becomes unbearable i just don't know what i am going to do, its going to be hard. I am really hoping that with a little treatment it will start to get a little easier and pray to god that it never gets worst than it has been already.
I have to admit i am really starting to get fed up with problems that i cant do nothing about or there is no treatment. Why cant it be something that i can take medication for to become better or at least i can get treatment to make things easier for me. First Cluster Headaches , no cure, no treatment just experimentation with medication and a life of hell, then a hiatus hernia in a place where they wont operate on and now causes a chronic re flux condition that again i cant do anything about apart from learn to live with it and now this, problems with the nerves in my neck causing excruciating pain with my neck and back and causes me major problems when walking. Once again there is sod all that can be done about it and nothing i can do. The final icing on the cake was when i got home and started to relax and come to terms with things, the doctor that i saw for the spine and nerves rang me on my mobile saying he just feels he needs to try and help me and we talked about the injection in the neck option but with the risks i will wait until it gets so bad i have no choice rather than going for it now. I am just praying to god things start to improve soon as i really don't know how much more of this i can take.
