All i can say is WOW! What an absolutely horrific group of attack i have had since last night and early hours this morning. I thought i knew how painful a cluster attack was as i have had enough of them but for some reason last night the attacks that came were something i have never experienced in all the years i have been suffering with the condition. The attacks started the usual way at the front of the head and behind the eye and once again is spread over the top of the left side of the head and into my neck. This time , because of the problem i am having with the nerves in my neck, it spread from the neck and down the entire left side of my body, my arm my leg and my back all lit up. I have never experienced this level of pain before. It was o bad i lost my hearing and all i could here was like a static hissing sound like a TV was out of tune. the entire left side of my face felt like it was electrified and on edge with really sharp burning and freezing pain at the same time.
The pain level just continued to get stronger and stronger and had gone past the point of praying to god to kill me and put me out of my misery. It had hit a point where i was feeling so sick fro the pain i couldn't stop retching. The sweat pouring off me had soaked all my clothes making me feel freezing cold as the body was burning hot. I couldn't see out of my left eye at all and my right eye vision was doubled. I couldn't talk properly , everything felt like it was slurring when i tried to say something and my body wouldn't stop shaking as the nerves were in that much pain. I managed to stop the first attack with an injection after 20 minuets it eased off but withing another 30 minuets i was into attack 2 and it was twice as bad and twice as long as i couldn't take another injection so soon so had no choice but to ride out the attack.
This continued with another 2 attacks all in quick succession lasting from 9 pm last night until 4 am this morning. I honestly thought that this was it for me, i was about to have my final attacks that will finish me off and i would then have one to many, that the body couldn't cope with, and that would be the end of me. This is how bad these attacks were! They have really knocked me for six and my poor body is in agony. The entire left side of my body is now tender after the attacks and i am afraid there are more to come yet. What has set them off so badly i can only guess but i believe its the problem with the nerves in the left side of my neck. I really don't know what to do after being told there is nothing they can do to help me i just don't know how on earth i can cope with this happening all the time. Its bad enough suffering from the cluster attacks in the first place but to have the attacks amplified due to nerve problems is just one thing i really don't know how to cope with.
As if it wasn't bad enough being in pain but i also lost feeling in my left arm and could only just about manage to stand up on my legs they felt so weak all of a sudden. Its really strange the effects that the nerves have on your body when things go wrong and some of them can be very scary as well as extremely painful. I am hoping this is just a bad flare up and things will settle over the next couple of days as long as i take things easy. With fishing about to start getting busy i really don't need more problems with my health at the moment so hopefully a couple of days rest and i should be ready to get out at the weekend. Fingers crossed eh!
