I managed to have a nice lay in this morning and didn’t get up until 8 am. Now this is lazy for me considering i am up usually in the early hours of the morning and even with out getting attacks i still tend to wake up at around 5am so managing 8 am is amazing. I feel great after having such a good sleep and a bit more confident about the things going on at the moment. I managed to sleep so well as we went fishing yesterday down at the local puddle as we call it (Lamby Pond in Cardiff, Next to Lamby Lake) and had a great time. That is the reason i slept so well because i was tired after a full days fishing and holding a fishing pole for hours.
I am still suffering from the infection although i have been pain free mostly. I haven’t had any head attacks since yesterday morning so i am over the moon about my medication as it seems to be working. There is always the risk that the attacks are just going through another cycle and will return after a couple of weeks or even a couple of moths. I have gone 2 months through last summer, although the weather wasn’t great, the seasonal changes seemed to have a big influence on my attack pattern. The attacks then returned as soon as the weather changed and the days became colder. This is also what could be happening now as i tend to get 2 or 3 weekly intervals between bouts of attacks when the summer approaches.
I am therefore not counting my chickens before they are hatched so to speak. I don’t want to get too excited about the medication but it seems to be having a good effect. I have had a lot less attacks than i normally get and find i am now getting out of the flat a bit more and visiting my mother a lot more now. I wasn’t able to when i was bad as i just couldn’t bare walking to her house as i would get a big attack every time and end up turning back and staying in my flat for the security and safety whilst i suffered with the pain.
I have agreed with the doctor to stay on the level of medication i am on and not increase until my infection is gone and/or i complete the antibiotic course of medication. I will then have to arrange to have weekly ECG scans before each medication increase to make sure there are no problems with my heart. I remember having an ECG when i lived abroad in Cyprus and was told that i had a strong heart so hopefully that will play in my favour. When i reach a level of medication i feel is keeping the attacks from appearing then we stop at that level and that will be the level of medication i will have to take each day in order to keep the attacks from appearing.
If you don’t get the attacks in the first place you don’t have to try and use pain killers or medication to ease the pain if there is no pain to ease. I am really hoping that it works and the attacks never return but listening to most stories of people who suffer with my condition then the attacks will return with the bad weather as it has done for so many years. There are other cases where the attacks don’t return for years so i could be lucky and end up pain free for many years to come. Fingers crossed!
