It is so easy to forget at times just how painful the condition CH can be. Again i was woken by the beast at 4 am this morning to what i can only describe as an attack from hell. Not only did it over power my injection and rendered it useless but even the oxygen had no effect on it and i ended up having to ride out the attack that lasted just over an hour. The side of my face became so drooped it looked like i had suffered a stroke and my eye completely closed and i couldn’t see out of it. My neck felt as if someone had hit me round the back of the head with a baseball bat and the swelling on my scar on the left side of the head was up like a balloon. I was getting really strong ringing in my ears and a feeling of light headedness once the attack stopped.
Its amazing how fast the attacks start and how fast they stop. You would expect them to ease of gradually as the medication takes hold but they just seem to vanish when they feel like it. I can only describe the pain as if someone is shoving something hot and sharp through your eye and instead of the pain lasting a few seconds it lasts for an hour. Non stop agony and pain like no other you have ever experienced. When people turn around and say “I know what you are feeling, I've had pain like that before” becomes extremely annoying as unless they are a CH sufferer themselves then they have no idea and can’t even come close to the level of pain you get.
Again the skies are looking grey and miserable so the low pressure weather is still upon us and that explains why i have been getting so many early morning attacks. I have also been getting a few during the day as well but nothing i can’t manage with my injections and oxygen. I was hoping as the warmer weather started i would see a stop to the attacks but this year they seem like they just don’t want to stop. Normally as the year goes on and the weather improves i get less and less attacks and that seems to have happened apart from first thing in the morning. I am dreading the winter period when it arrives as i just know its going to be as bad as it was last year and i just don’t know how i managed to survive.
It won’t be long before my next appointment with the specialist and hopefully they can find another medication combination that will help put a stop to the attacks i am getting in the mornings and hopefully put the beast to sleep once and for all. I have tried to start taking the Verapamil tablets once again but they just seem to make me ill and cause me chronic IBS so it looks like they are not going to help me one bit. It’s a shame as they felt like they were starting to work when i was on them for 2 weeks. I just can’t go through all that hassle with my bowls again it was embarrassing enough the last time.
The stupid social sent me a letter to attend an interview with the idea of me returning to work. How on earth they expect me to attend the interview with my head is beyond me. It’s bad enough jumping on a bus and travelling to the shops as the vibration and cramped conditions always seems to start off my head and now they want me to travel in to town and spend an hour on the bus. They have no chance in hell! If they can supply me with transport to and from the office and also somewhere i can go to take my injection in peace if an attack happens with oxygen on hand they by all means i will attend. But something tells me that just isn't going to happen. They did say they would ring me and do the interview over the telephone but i waited in all day Friday and no phone call so i am now going to have to chase i up on Monday and ask what is going on. More stress to deal with, it just gets worst!
