I haven’t been updating my blog lately , not because of laziness, but due to me having a strange turn in my health and a change in what the new medication was doing to me. I was so pleased at the beginning as during the first week of taking the Sodium Valproate my attacks seemed to stop all together and i was so happy and the only side effects i was getting was some violent nightmares causing me to wake up all in a fluster and a sweat. A lot better than waking up in agony at 4am in the morning i can tell you. Unfortunately the good news didn’t last as when i returned from the hospital, after giving my report as to what was going on and asking them not to increase the dose until the nightmares stop, the very next day i suddenly became very unwell.
I was getting constant cramps in my calf muscles in the legs and could hardly walk or move around and when i did try and walk any distance i was suddenly being drained of all my strength and my chest became tight and i started to get chest pains. This continued and got worst for 2 days until i spoke with my chemist and he checked on the computer and told me it was a side effect of the new drug i was taking. I then decided to reduce the dose to one tablet a day, instead of two, and then stopped it all together. It has now been 3 days since i stopped the medication and the cramps in the calf muscles has eased and gone away and i don’t get so drained when i try and do anything.
I still struggle if i have to walk o the shop that is only 2 minuets away from my flat and it seems to wipe me out even climbing the stairs to my front door but i feel a lot better than i was. I made an appointment with my doctor so i could report what was going on and asked her advice and she said the same thing i was thinking, “surely i can’t be intolerant to all the different medications?”. We both think that there is something else going on and that it is linked to the trouble i have when eating and drinking. Every day i get liquid or food trapped when i try and swallow and it takes ages for it to go through and drop into the stomach. At times i have to bang my chest and massage it to help the food or drink pass and due to this problem we are waiting for an Endoscopy to try and find out what is causing it. This could be what is causing me to have strange reactions to any new medication introduced to the body but until i have the check up and the scope down the throat we won’t know for sure.
Also during the last 3 weeks i have had a lump appear on the left side of my spine where all the pain i was getting from my lower back started from. I showed the doctor and she managed to find it straight away and has now referred me for another scan to try and find out what it is. It could be a fatty cyst or lump that could be pressing on the nerve in my back every now and again explaining why i get the sharp shooting pains up the back into my neck. My luck with my health the last few years has been really bad and i just wish something would cut me a break. I have been in so much pain all the time is is horrible and trying to move around is just agony. I haven’t even managed to get out and go Carp fishing witch i love so much and its starting to drive me mad.
I am hoping over the next couple of weeks they will get to the bottom of all these problems and side effects i keep getting and try and explain to me what is going on> I know i have the condition CH and that there is no cure for the condition and i can accept that and i understand that i will be on medication for the remainder of my life. All i ask is to be made comfortable so i can go fishing at least and that way get out of the flat that i am stuck in all the time. I have prayed to god that something or someone somewhere will know what's happening to me and will be able to make me comfortable again instead of constant pain and agony all the time. I feel like they just don’t care and have left me to rot in my flat. My specialist is the only one that is trying to help but even he doesn’t have all the answers as he is a Neurologist and doesn’t deal with the rest of the body. I really don’t know what to do anymore and feel so low at the moment i am scared, scared of myself as i know how depressed i can become and suicidal is one thing i don’t want to ever feel again. God Please help me!
