You know i get so fed up with this stupid head waking me up early hours all the time. Again this morning at 3am wit yet another attack and a head from hell. The pain was so bad this time it has left loud ringing in my ears and a ball in my neck. Each time i move my head i can feel a pulling sensation over the top of my head and a sharp pain just above the eye as well as behind the eye. This must be there nerve that is damaged swelling up and i can feel it when it does. It has lasted just over an hour this time and even though i was using the oxygen it didn’t seem to help to reduce the attack as it normally does.
I had my meeting with the specialist but didn’t manage to ask the questions i wanted to. He was so busy because of all the other consultants being off sick and he was having to do the work of 3 doctors he seemed as if he rushed through everything but he did explain everything to me clearly so i could understand. Basically they found nothing in the head scan that was causing my CH to be worst than it is. The attacks i am getting are the normal ones that come with this condition and the pain over the head and into my neck are from the attacks. The pain in the back is something different that i have to get my doctor to refer me for an x-ray to look into the possibility of arthritis of the spine.
I have been worrying so much about the attacks themselves and trying to deal with the pain instead of concentrating on the actual cause of the attacks and trying to avoid the cause. He said using drugs we will build up a level of resistance which will put the attacks to sleep so to speak so i wont get them in the first place and won’t have to worry about dealing with the pain. It may take a combination of drugs to get this result. He has told me to stay on my medication of Pregabilin at 300mgs in morning and again in the evening and now adding a drug used for blood pressure and heart attacks.
This drug in high doses also help with my condition. Having to have such high dose means there is a small risk and very rare chance that it can cause a heart attack so each time i increase the dose i have to have an ECG, this means going to hospital every week. the drug Verapamil will be increased each week until i hit the right dose that stops the attacks, we are starting on a dose of 80mgs which is being increased by 80 each time.
So it looks like i am stuck with this condition and there is nothing anyone can do about it apart from trying to get the beast to sleep using strong drugs that also has a risk to my health. I am already feeling ill due to the amount of tablets i take and constantly struggling with stomach issues when i never used to have. The pain that travels in the nerve is not just causing my neck to hurt but also my back with another issue being aggravated and now looks like i will end up having problems with walking and moving about in the future as arthritis sets in.
Although the future looks grim it does mean i will have plenty of time on my hands to do something i love so much, fishing. Even if i loose some mobility with the help of wheel chairs i will still be able to go fishing and enjoy the sport. I know my mobility will not become a major problem for a few years yet so i have lots of time to catch me a record size fish. You never know i could get one while i am on holiday in April. I am so looking forwards to it as it has been a long time since i had a holiday and chilled out. I could have 7 days of non stop fishing if i wanted but i wont as i want to take a couple of days out to take a look around the area and see the sites. Come on April hurry up!
