I haven’t a clue why it started but yesterday became a day from hell with the amount of attacks i was getting and the level of pain was like i have never experienced before. I know it sounds crazy to say something is more painful than the most painful condition known to mankind but yesterday they were! I have had many attacks over the years and can honestly say i have experienced the worst, well up until yesterday i could. The pain was reaching such levels i couldn’t even touch my head. Normally i can help the pain by massaging my head and pain points but if i touched my head it would just increase the pain to a level where i was actually passing out. This continued right through the day, attack after attack, my body felt drained of all its energy and i was passing out where i lay or sat depending on my position. I tried everything to try and get the pain to go but it just wouldn’t play ball. I took my injection but that didn’t even touch it and when i tried the oxygen i just kept on feeling sick and had to stop after 10-15 minuets.
I don’t know why my head suddenly turned that bad, and its even more annoying now i know there is nothing at the site if my scar and swelling that is causing me to get them according to the hospital. I am NOT convinced, If you get swelling in an area of your body it means your body is trying to fight something there that is injured or a problem. After getting my results yesterday and then going through what i would class as my worst day ever, they can not tell me there is nothing wrong when i know there is! I just walked over to Tesco to get some money out of the cash point and my back is literally killing me. The pain i am getting when i am walking is no joke and it feels like it is spreading or getting worst as time goes by.
Ok i agree to the diagnosis of CH and will accept my condition but there is no way i am accepting the fact that there is nothing they can do about it. In this day and age with technology and the research into worst conditions than mine such as cancer you are telling me that someone has to go through this amount of pain all the time and there is no way you can help them? No i wont believe it! I know my own doctor is reluctant to prescribe any form of pain relief as i became addicted to them last time and went through hell because of it but surely a human being should not be in this much pain all the time. There MUST be something they can do!
All i can do for now is wait for my appointment on Monday to see the specialist and see what he has to say about it. Its getting to the point that i can’t go on like this. Either this condition will kill me or i will kill it one way or another i can’t keep on going through that amount of pain all the time. Was hoping to be going fishing tomorrow but looks like that may have to be cancelled as the weather is taking a turn for the worst again which also means so will I. I am hoping this is not the case and we do get to go fishing as i have been missing it so much but its pointless putting myself through agony just to catch a fish. We will have to wait to see if the forecast changes by lunch time as it usually does. Fingers crossed and here's hoping!
