I wasn’t woken by the beast but instead by my neck causing me pain. Each time i get an attack my neck feels like there is a ball stuck inside it and i get really bad pains where the nerve is obviously swelling up. The trouble with this is the pain i get in my neck almost every time ends up setting of a full on head attack that can last for anything up to 2 hours in total. These attacks are some of the worst i have ever experienced and they are the ones that scare me the most as i am sure i am going to have a heart attack or stroke when these attacks happen. It doesn’t matter if i take my injection or stay on the oxygen nothing seems to stop the attack. My chest tightens and it gets hard to breath even with the oxygen on full and the mask stuck around your face.
The pain is so strong i have passed out on several occasions only to waken to loud ringing in the ears and immediately more pain. The face droops and the eye swells up and won’t stop running with water.You can’t stay still as the pain is so strong all you can do is thrash about hitting your head in hope that the pain will stop. Once the pain eases away as fast as it has appeared you are left feeling like you have just run the marathon about 10 times over. You can hardly walk as the aches and pains in your back for 1 to 2 days after a big attack remains sore and you get shooting pains up into the back of your neck and between the shoulders.
Every time i walk some where i get bad pains in the base of my spine spreading into the butt cheek. The pains are quite strong and if i carry a heavy shopping bag in my right hand then i will get very bad pain in the back and in the left butt cheek but if i swap hands the pain disappears. I have spoken with the specialist about this and he believes it is something else going on in my spine at the same time as i am suffering with CH. Now having to ask for a referral to scan my spine looking for arthritis of the spine is not something i thought i would ever be doing. I know it is in my family and my mother and brother both suffer badly with arthritis and both have problems with their spines but i thought it may have passed me by. Looks like i was wrong!
Although things seem bad at the moment there is some light at the end of the tunnel. They are starting me on my new medication soon so hopefully this will end the rest of the attacks i am getting. I believe the Pregabilin has worked but needs help to stop the attacks completely as it has definitely halved the amount i get. Now with the other drug i should be able to keep this beast under control and hopefully get a lot more pain free days than i am currently having. The weather is looking to improve this week and warm up again so it looks like i will be going fishing again on Saturday. Hopefully, if it is warm enough, all of us are going including my mum and step father so it should be a good day out. Its these fishing breaks that are keeping me going and keeping my mind on something other than my health. I don’t know why i relax so much when fishing but its something i love to do and now i will have plenty of time on my hands to do it.
