I continued to get attacks yesterday ranging from a mild headache to a full blown attack. After the morning wake up call i managed to keep the attacks from building too painful up until early evening when i was about to eat dinner. I suddenly turned my head to look at something on the TV that had caught my attention and suddenly a shooting pain over the head followed by sharp pain behind the eye. Yet again i was about to have a nasty attack. I jumped out of my chair to grab my injections when suddenly, for some unknown reason, my legs decided they didn’t want to co-operate and i slumped to the floor. I managed to reach across and grab my injection and took it before the attack started to build to such a strength there would be no way of aborting it. Why my legs suddenly went funny i don’t know and still have no idea but at least i managed to get to my medication in time to abort the attack. I then sat on my oxygen for 30 minuets and that also seemed to help ease the aches and pains in the neck, shoulder, head and back. I continued to get a couple more attacks before bed time but they were manageable.
I was then woken by the beast, not at 3am like it usually does, but at 8am this morning. I managed to get a lay in bed till 8, i was shocked. Apart from the fact i was in agonising pain when i woke up i was actually pleased it wasn’t another early morning start. I have been feeling so tired due to the lack of sleep from the previous week that i decided to have an early night yesterday when the attacks eased off and then to be able to lay in till 8 am this morning meant i have been able to recharge my batteries and i don’t feel as tired as i normally do. My head is sore after the attack this morning and i have a bad pain in the neck at the moment while i am sat at the desk typing the blog. I am still getting pains running down my back and when i walk even though the weather has improved a bit today. The sun is shining this morning but i don’t think that will last for long as we have been forecast rain for the entire week and have flood warnings in place as they think it will be that bad. I watched the weather forecast on TV last night and it showed the satellite images of a huge low pressure area above us. This i believe is the reason for my recent attacks.
I am now at my maximum medication dose for the Pregabilin, 300 mgs in the morning and 300 mgs in the evening, so now its just a waiting game to see if it will help to put the attacks into remission. I am hoping that it will work as i know it has reduced the amount of attacks i get during a period but doesn’t seem to have stopped them from coming. Maybe it has to build up in your system first but surely i would have seen some results other than reduced attacks. It is possible that due to the cold weather and low pressure fronts it is making my head very bad and that is why it isn’t giving the medication a chance to work. I do wonder whether i would be getting a lot more attacks if i wasn’t taking the medication and i would be in real trouble during the winter months like i was last year. This year has been a lot better and i am glad to have the injections and a way of actually aborting the worst of the attacks when they come. Its just a shame i can only have 2 injections in a 24 hour period and have to make sure there is at least an hour in between injections as sometimes i can get attacks straight after each other with about 5 – 10 minuets in between.
I have been trying to stay positive and focus on my fishing and holiday that is due in April but it is very hard. Especially when you find yourself shut indoors all day long frightened to go out in case you get an attack. Scared that the wind and cold will get to you and you end up having a day from hell. Even my mother took me shopping with her yesterday as i was so down and fed up i just needed to get out of the flat and stop staring at the same four walls. As soon as she offered i jumped at the chance and immediately she picked me up with Brian, my stepfather, and off we went to do her weekly shop. Mind you i can’t say i didn’t benefit from it as she ended up doing my shopping for me at the same time, what would i do with out her! My family have been so amazing since my diagnosis and have helped me at out so much i just don’t know how i would ever repay them.It won’t be long before the weather will warm up enough for me to get back out on the banks and start fishing again and i am so looking forwards to it you just couldn’t imagine.All my fishing tackle has been cleaned and organised and then cleaned again i am so eager to get back out and catch myself some nice size specimen fish.
For now all i can do is sit and wait patiently for appointments and for the weather to become good enough for me to go out fishing. I don’t know why but when i am at the waters edge concentrating on fishing i don’t seem to get the attacks building and i very rarely have an attack it is VERY strange. It seems to calm me so much and i enjoy it. I have a tent like structure known as a Bivi that i take with me so if i do get an attack i can just crawl inside to take my injection and then i am able to continue fishing as soon as the attack has gone. Until the weather breaks i will just have to wait. I can’t spring clean my flat any more than i already have, i have spent the last 3 weeks non stop cleaning and organising so my flat is spotless and completely tidy. All that's left to do is to paint the walls and maybe get some new carpet or flooring. Unfortunately i am unable to do the painting as i cant use the roller or brushes. As soon as i begin and start to strain the arms whilst painting it always ends up setting off big attacks as it gets to the neck and then the head. Its driving me crazy not being able to do it as if i could by now i would have the best looking flat in the area. So it looks like i will have to pay someone to come and do it for me. This is going to turn out expensive. It has already cost me a fortune in gas, last year and this year, as i had to keep the temperature of the flat above the 15 degrees mark no matter what the weather as if i don’t the cold or chill gets to the back and neck and sets off an attack.
