Well at least i managed to sleep till 6am this morning. Considering i am normally woken up by 1am or 3 am with attacks, to actually sleep through till 6 is amazing. I have woken up with a horrible taste in my mouth. Like a metallic taste, as if i have sucking on a battery all night.
I have had this taste once before, when i had a massive attack and couldn’t get it to abort no matter what i tried, even to the point i had to take an injection and it STILL didn't want to stop. To have the taste in the mouth and not have any attack is strange, very strange.
I haven't as of yet, had my first attack of the day yet so lets hope it doesn't start up like it was yesterday. It wouldn't rest, yesterday was a very painful day. I had over 8 attacks yesterday but most of them were smaller attacks than normal but still as painful. The attacks in general normally last between 10 minuets and 1 hour, but the attacks yesterday were only like 5 to 10 minuets long and then they just stopped on their own.
I have the feeling of pressure on the left hand side of my face yet again, this is what i assume CH sufferers refer to as the “Shadow”. Also when you get the feeling of pressure you are guaranteed that sometime today i will have a massive attack. The really big attacks only ever come when i have this feeling. I also get swelling on the top of my head where my scar is, from when the head was split open like a melon all those years ago. This swelling could be the cause of my attacks to become daily instead of monthly.
When speaking to the specialist i asked about the swelling and if it was contributing to my attacks and the specialist has agreed to scan the brain and make sure that is not the case, to put my mind at rest (excuse the pun). It is anyone's guess as to why i am now suffering on a daily basis with these attacks and the specialist seems to think this is normal for my condition, to suddenly become chronic instead of having attacks for shorter periods over the year. So far he has been right about everything. He was spot on when diagnosing the condition. He seemed to know me and know how the attacks were effecting me as he has dealt with it all before.
lets hope he continues to be correct and gets these attacks under control with the medication the are now putting me on. They have increased my medication by 300% and will continue until they reach the maximum i am allowed in 24 hours. If this doesn't work then they will have to withdraw me from the one type of drug and then change me to another. let the trials begin….
