Well that was a nice meeting i had at the hospital with the doctor. Put me at ease straight away and then we discussed what was happening. I explained how i was coping each day with the attacks and taking the injections, but it is very hard to explain to someone how much pain you are in unless you are in pain at the time.
It is very difficult to know exactly when to take your injection as you could waste it on a small attack and end up suffering a massive one later in the day. But i have to admit the injection works every time. It is a shame you are only allowed two per day but there must be a reason so i have to stick to it. The doctor has advised me that they will increase my medication of the Pregabiline up to the maximum dose allowed and then see after a few months if it is helping with the episodes. We talked about the use of oxygen and how it was helping to reduce the amount of time the attacks last and i also explained how the mask keeps letting out too much so you have to seal it off to ensure you get a proper flow of oxygen into your system when having the attack.
He explained clearly how it will be trial and error to get the medication rite as every one suffers in different ways and they react to medication differently. One type of medication may work for one person but not for the other so we are in unknown territory at the moment as the trials continue and we have to see what types actually help me.
The doctor then gave me an injection into the nerve at the back of the neck to “hopefully” stop the attacks or reduce them. He did explain it may not do anything but its worth a try. I would say anything is worth trying when you are in this much pain. I have to say his aim was spot on, he hit the nerve with the first shot and i felt a small electric shock feeling travel along the nerve to the front of the eye and then it stopped. Then all of a sudden i felt pressure build up on the left hand side of my head and an attack started. It wasn’t a full attack as it only lasted a few minuets and the pain wasn't any where close to what i have been experiencing, but i know for sure he hit the rite nerve as it is exactly the feeling i get when i do have a full attack. Lets hope it does something to help as a break from these episodes would go down a treat rite now as i feel so tired all the time.
