I think in my heart i knew i was going to be woken early on Christmas day! I managed to get back to sleep for an hour after the first attack about 2am this morning. I was then woken by an even bigger attack that was a little scary if i am to be honest. The pain was so bad i thought i was about to have a heart attack or worst a stroke.
I have had a few attacks that have done that to me and sometimes wonder if i will eventually fall to one of them. The pain becomes so strong you sometimes faint or pass out. I know for sure that i have passed out even for a couple of seconds as i get that horrible metallic taste and head throbbing when you come around. Unfortunately it doesn’t just stop when you have fainted. When you do come around you realise you are still in a lot of pain and it all starts again. This all happens in just a few seconds but when in pain feels like ages.
Again used up my injections early but wonder sometimes if you get used to having them so the body is now waking me up and giving me the big attacks. Maybe i should take a break from them and try and ride out the pain for a couple of days. The trouble with doing that is i will have to ride out the big attacks and trying to do that is very scary and hard. Instead of just lasting a few moments, up to 30 minuets maximum when you take the injection. It will last anything up to 2 and half hours. I am not sure if i have the strength in me any more to ride the pain for that long each time an attack comes.
Yes the amount of attacks have decreased since i started taking the medication but i still get anything up to 4 big attacks in the mornings. I do get some smaller attacks during the day and some at night, but they now seem to be mainly in the early hours when the temperature is at its coldest. It is strange how i am getting constant attacks all the time now in the winter when i used to have more breaks. I am lucky to get 2 or 3 days in a row with out having a big attack. I am just hoping i get a break soon as its making me feel very weak at the moment. I am due a break so just pray i can keep the attacks from happening during the day. I am even breaking my rule and taking some pain killers on top of my medication just to try and stop the neck from hurting and causing me another attack. I stopped taking pain killers as i used to eat them like sweets and was making myself extremely ill so after today i wont take them anymore as i don't want to start down that road again.
I am still waiting for news of my scans and know in reality it won’t be until the new year when i get the results. I am praying they haven’t found anything that is going to make things worst and pray its something stupid like a bone chip resting on the nerve or just the nerve itself. The swelling on the top of my head is getting bigger and now stretches down the back of my head following the path of the pain. When there is swelling it means there is something the body is trying to heal but cant and that's why it swells up. To me that is a sign there is something there on the area of my scar. If its not something there causing me the pain and the swelling is just the nerve as it is damaged then i will accept my diagnosis of CH, but surely something can be done to stop the swelling and maybe that will then in turn reduce the number of attacks and the severity of the attack. Again i am just guessing and can help but wonder what in doing this to me.
Anyway its Christmas day and that is a day to enjoy with your family getting together and celebrating so i have to cheer myself up and see if i can get this ache and pain to stop on the side of my face. At the moment i feel like i have been hit around the head with a baseball bat. This is the after effects of the big attacks. Eventually it will ease off but maybe if i jump in a nice hot bath it will ease and stop most of the aches and pains especially the ones in the back. So Merry Christmas and have a great day, that’s what i am going to do and take my mind off all the worries and stress. Lets enjoy the day and get in the Christmas spirit. Can’t wait for the Christmas dinner and i am hungry already just thinking about it. HAVE A GREAT DAY ! MERRY CHRISTMAS EVERYONE!
