So much for pain free days lasting. I managed to stay pain free all day yesterday even with the cold weather dropping to freezing conditions late in the evening and early hours but as soon as i woke up this morning at about 7am all i could feel was a cold ring around the top of my head. I placed my woolly hat on to try and warm my head up and went and sat in front of the electric fire but it was all in vain as within 20minuets of waking the attack started to build. Well at least i had one days break from them. I suppose it’s better than not having any breaks at all.
Its another freezing cold start to the day. The sun is shining but its taking ages for anything to warm up its that cold today. There is frost on the ground and damp in the air as it was raining last night or early hours as everything seemed soaked and frozen when i woke up. I am having to be extra careful at the moment as i don’t have many injections left to abort the attacks when they come. Its not my doctors fault as they have even prescribed me extra injections so i don't run out but according to the chemist the company that makes the injections are out of stock and are waiting for their new stock to arrive. This is not good!
This happened to me during the summer as well but it wasn’t a problem back then as i was having less attacks than i am at the moment. This time of year is always worst for me so all i can do is hope they arrive soon and ride out the painful attacks when they come. I am still averaging between 6 and 8 attacks in day, most of the attacks seem to be early in the morning and at late night when the temperature drops to its lowest. It doesn't matter even if i keep my heating on full blast and keep the flat hot i still seem to get effected. I had the temperature like a sauna yesterday, the heating was on full blast and i had the electric fire on full as well. At one point i even had to turn off the fire as i was so hot i was sweating whilst sat trying to watch TV. I have to be careful even when it is hot or warm as sometimes excessive heat on the side of the face or head can also set off attacks.
I have identified so many different triggers for my condition its starting to become a problem. Its as if no matter what i try i end up setting off attacks all the time. If i try and stay warm i end up too hot and an attack will come. If i cool down i end up getting cold on the head or the face and that will then trigger an attack also. If i try and carry too much shopping in the left hand and strain my shoulder or if i try and rush about and end up out of breath, these will all set off attacks. No matter what i do i can’t seem to stop the attacks from happening. Its as if the attacks are going to come and no matter what you do to stop them they will still come. Even when i use the injections to abort the attacks it is as if i am only delaying the inevitable a the attacks come back later and seem to be stronger each time.
Well now that i have had my little rant and moan i am feeling a bit better. It is sill very cold so all i can do is stay warm and hope for the best. i am praying the chemist manage to get my injections in before the ones i have at home run out all together. The doctor has agreed to continue my drugs increase with the “Pregabilin” tablets and i am now slowly increasing the dose every week by 25 mg up to a total of 300mg in the morning and 300mg in the evening. i am hoping when i get to the higher dose they start to reduce the attacks like it was when i first started the medication. Only a couple of weeks left and i should get my results for my head and brain scan. I am praying there is nothing serious found or if they do find something it will be simple to rectify as i am still convinced there is something there on the side of my head that is causing the attacks to be worst than what they should be and also causing the swelling on my head to come up all the time especially when i have the big attacks. Fingers crossed!
