At last i got the date for my next appointment at the Heath Hospital with the specialist. So far its only been 6 months in between appointments! Not a long time to wait is it? (ya laffin aren't ya!) Well the main thing is i got it and gives me a chance to ask some questions that i really need answers to.
(1) Why have i got swelling around the scar on my head where it was split open. An if i didn't get the CH from the damage how come its on the same side and seems to making the attacks worst.?
(2) OK if the damage to my head has only aggravated a condition that i already had, how long have i actually had the condition for?
(3) What, if anything am i able to do to help me get sleep when i am having so many attacks?
(4) How long will these attacks continue or will they reduce over time after treatment?
You know i am actually sitting here typing, thinking of things i need to ask the specialist? I didn't realise i have SO MANY questions that i need answers to. The change to my life and my social life is beyond belief.
Before the attacks began:
Owned my own company (computer in Cyprus)
Used to have BBQ’s every weekend down on the beach.
Lived in Cyprus in a nice beach villa
Married to local woman (Sofia)
Worked 6 days a week
Run my own Night Club at weekends
Used to Teach computers for the military (54th Army Education Centre)
Enjoyed Fishing
Regular Sports Diving in the Med
Attended many business seminars to promote IT in Cyprus
Visit Family regular (mainly the in-laws)
Used to enjoy hunting trips with friends.
After the Attacks began:
Moved back to Wales, UK. due to no medical support in Cyprus unless insured or private.
Divorced for Partner (She couldn’t take the stress and the life style sudden changes)
Live alone in Block of Flats
Constant medication – resulted in self medication and heavy addiction to pain Killers and opiates
Cant Work due to attacks so now on Benefits
Don't go out, to scared to in case of attack.
Don’t Visit People or socialise with friends (embarrassed when attack comes)
Always in pain so don't seem to chat to people ( seem very closed off)
Now Hides away from the world
As you can tell the changes to my life over the last 10-25 years have been very dramatic. I went from being some one with loads of energy who used to love getting involved in any project to someone who cant even bring himself into going shopping at a supermarket that is 5 mins down the road from him.
I am realising that i am not the only one with this problem and that there are others out there who are suffering just as bad, if not worst, as me! But there seems to be very little support and very little known about the condition. I don't know what else to do apart from wait?
