Friday, 7 September 2012

Just a little Thank you!

Since this all started years ago i never thought i would be in this situation now, at first they was only like having migraines once in a blue moon. I only ever had the painful attack once every 2 or 3 months, then It started to become more and more regular, changing from a couple of time a years to a couple of times a month and then a few times a week. At that point i was in hell! I thought i had done some thing bad to my head and caused irreversible damage. I basically blamed myself. I thought i was the only one with this problem and why was i being punished, why was there nothing anyone could do, or so it seemed at that point. Not only was i going through hell physically but also mentally too. I started to self medicate as i couldn’t get strong enough pain killers from the doctors as they kept on giving me migraine treatment. I felt like there was no return, there was no one that COULD help me and became very low and depressed (suicidal as well). Then the last 2 years the pain increased again! I was convinced i was dying. Having attacks every day and not just one but a number of attacks was to me the sign that what ever it was was going to finish me off.

When i finally got the diagnosis it was like a huge weight had been lifted from my shoulders and the worry wasn't so bad anymore. I still felt like i was alone in all this but there was a glimmer of hope as they could help treat the condition and teach me to control it with pain management.

Then when i went to my chemist ( who is brilliant and a mild sufferer, so i found out), he explained to me there was a support group on line and suggested i get in touch with it. So being into computers i couldn’t believe i hadn't looked for it before, but saying that i didn't know what i was looking for back then. Anyway i searched Facebook and found their web site. I joined it and found so much information about the condition, the treatment and the support that is available out there.

I wasn't alone no more! The “Cluster Headache Support Group” on Facebook has become a life line for me. Some where i can go and talk to others who have the same condition and actually understand what you are talking about and the amount of useful information with regards to treatments and how to try them and take the treatments correctly. This site is amazing, a big thank you to all of the members that have shown their support at this difficult time.

I really now know i am not alone…. Open-mouthed smile