After years of suffering and constant cluster attacks it has been a difficult journey learning to deal with this illness and the problems it brings. One big problem is the fact that you end up cut off from the world unable to go anywhere due to fear of having attacks all the time. Oxygen is the biggest help out of all the medication and being able to take it with me when i go out would mean i can get out and about more and not feel cut off but its been a difficult battle in order to get a portable version as the big tanks are just too big to carry with you. Its fine for times when i go fishing as i can just chuck the bottle in the van and take with me that way but not always do i have transport available to take me.
Thankfully the hospital listened to me when i last went to see them and understood why i was feeling so cut off from life and struggling on a daily basis. They finally changed my script to not only allow me more oxygen bottles but also a portable system that i can carry with me at all times in case of the attacks when i am out and about. This is such a relief especially after struggling for so many years, When i was first diagnosed i thought my life was over and it would be one down hill struggle but i am finally getting some sort of control again and having portable oxygen available to me means i can once again be a social person.
One of the reasons i had to stop my fishing through the winter is because my attacks increase to such a level its impossible to cope with on a daily basis unless i have oxygen available to me. Even though i have the injections to abort an attack i am only allowed 2 in a 24 hour period with meant when i have days with 4 or 6 attacks happening i would have to fight the attacks and ride the pain making for one miserable life. Now i have the oxygen and the portable unit i am going to be able to get out much more in winter again meaning i wont have to stop my fishing now and can get back on the bank sooner than i planned. Lets just hope everything else goes according to plans now.
