Once again you find me battling with the beast on a daily basis, yes the clusters are back and with vengeance. After having my last nerve block at the start of the year my clusters have been non stop daily and no time off. Every morning I get woken between 2 & 4 am which I call "cluster o'clock" and the pain level has just been brutal this year. I don't care how many years someone suffers with this condition you will never get used to the pain or ever find a way of dealing with it other than through medication or treatment. I have tried other ways of trying to manage the pain from acupuncture to meditation and the only thing I find that reduces the amount of attacks I get in the day is when I am out fishing and the body relaxed. Unfortunately due to nerve damage In the neck and spine I have had to take time out but am about to restart my journey and get back on the bank so I am hoping it will help to reduce the daily attacks.
Well I started the summer great with a bit if a cancer scare due to a testicle suddenly enlarging and doctors confused so rushed me for urgent scans. Turn out a bit of good news bad news scenario , the good being it's not cancer . The bad is they found a cyst at the end of my tube and the tube has enlarged along with the testicle so could be possibly causing a blockage . This will mean another trip to hospital and an operation to remove the cyst I think as the testicle is still growing, slowly, but growing. My luck when it comes to my health is just awful and when ever I think I am finally winning I get knocked back down. Well one things is for sure I can't get any lower at the moment so there is only one way to go and that's up. Let's hope I can jump on the ladder and start climbing as it's really starting to do my head in and I just need a break. The body feels so weak lately after having to deal with so many attacks. I know they say clusters can't kill you but I am sure the side effects and after effect of a cluster can if you don't look after yourself. I have never felt so beaten up in my life where the entire body is suffering. I am hoping this will soon calm again once I have a grip of the attacks and get them under control again, if they ever were.
Not much else to report at the moment as I am still waiting in treatment and scans for my neck and spine and due to COVID I can't see it happening any time soon. All we can do it grit our teeth, grin and bare it. The neck is worst then ever before and effecting my entire upper body and the spine seems to come and go making it difficult to walk some days. The pain level is the worst thing as being nerve pain it's always sharp and strong making everything an effort. Simply walking to a friend's who lives 5 minuets away is like doing a marathon. The pain level from the spine is shocking , it's so intense you find it hard to catch your breath . Thank God it's not all the time and only flares up now and again. I am sure this, what ever it is, is what causes the weakness when I walk and also the pain when I try and push myself to far. Let's hope it's not too much longer to wait for the scans.
