Once again as things start to improve for me the beats returns and shows its ugly head! At 3 am this morning i was woken up with a massive attack over the left side of the head. Starting again from behind the eye and shooting over the head into the neck. The pain level was so bad i thought i had past out at one point. I have had hundreds of attacks and you would think i would be used to them by now but the level of pain just seems to get worst and worst each time an attack appears. I was doing well for a while as i hadn't had an attack for a couple of days but i have been feeling very ill just lately.
All of a sudden i cam down with a viral infection just over a month ago and because i was violently sick during that time it feels and looks like i have made my hiatus hernia even worst as now i cant eat or drink with out it trapping, causing pain and i have to massage the chest just to get food and drink inside me. How long i can go on like this i don't know. The doctor has referred me for another endoscopy to see if i have made it worst and i suppose at this time they will decide what to do. I have managed to get over the viral infection with the help of antibiotics but seem to have gotten worst over the last month yet again.
I keep breaking out into cold sweats for no reason and my eyes keep burning. I am getting pain in both side of my neck up the back of the head and every now and again a small headache appears on the right side of my head, only for a few seconds, and then disappears. My stomach has swollen up to twice its normal size and my bowels don't seem to want to work properly. I am getting sharp stabbing pains under my left shoulder every now and again and i keep feeling very sick. As well as all the pain and the cluster attacks i am feeling very weak and even doing small jobs around the flat seems to be more than i can manage. I suddenly feel weak and faint and have to stop every 10 minuets as i feel as though i am going to pass out. What on earth is going on.
I am booked to see the doctor again this evening and then i have an appointment at the hospital tomorrow for an assessment about my head, once again. The neurologist feels i am also getting bad migraines as well as the cluster attacks as i get different types of attacks depending on where they start. Sometimes its from behind the eye and the top of the jaw which are the cluster attacks on the left side and then i get the ones that start at the top of the head and make the whole of the head throb and hurt and suddenly become very heavy. These are the migraines i think. Why cant i suffer with just one problem. Its bad enough they cant cure the cluster condition but to have other things wrong at the same time and not know what on earth is causing it is really starting to get to me.
I am sure that food is trapping in my upper chest and i think i am having reactions to this. I know its trapping as i was prescribed Appercap for the wind i have and when i take it, sometimes it releases in the upper chest and suddenly the whole of my chest feels freezing cold and icy from the mint and i get a very minty breath all of a sudden. It is so strong it actually takes my breath away and i have to rub my chest and drink coffee just to make it pass through. Why its doing this i can only assume its the hernia that is stopping the food passing through and i sdont know what else i can do to stop it. I am praying the doctor and hospital do something soon to help me as i really dont know how much more i can take. The last couple of weeks i have become so ill i am really worried and i have never felt so weak. I know i have been through a lot when it comes to my health and ever since i started the medication to try and get the clusters under control my health has been going down hill fast. I think its mainly to do with the side effects of the medication and the allergic reactions i had but surely they can do something about it. Fingers crossed they do it soon.
