The day after my endoscopy at the hospital i suddenly had what i can only describe as an attack from hell. It has to be one of the strongest and most painful attacks i have had in a long time. With my attacks now down to half the amount they used to be and an average day seeing mostly 2 or 3 attacks, that i can deal with using my injections, you can sometimes be lead into a false sense that the attacks are stopping or getting better then suddenly you have a really bad day triggered by either stress or cold and then you remember just how much pain you are actually in all the time. No matter how many attacks i have and how used to it i think i am you always end up surprised just how much pain the human body can take.
Each morning i am still waking up in the early hours with the beast attacking me and my head seems constantly swollen along the line where the attack seems to run. My neck is in pain all the time and i am still getting pain travel from the neck down the back towards the lump i have on the left of my spine in my lower back. This lump can sometimes hit nerves as it moves about and when it does it send an electric style shock straight up my back and into my neck. This can also set off the attacks and aggravate the beast if i am not careful. My stomach is still swollen and my bowels are still problematic. At least i now know it is the hiatus hernia that has been causing all the problems up in the chest and when i eat and drink. I just don’t know what the doctor plans to do about these problems or if they are just going to leave me and i will have to manage them with yet more medication.
I am still sure it was the medication that has caused all these problems. Because i have to take strong medication for the CH condition it has side effects that you have to put up with if you want to remain pain free. Then you end up taking more medication to take care of the side effects and it just one giant circle. No wonder my bowels are so bad and i am always suffering with constipation. I am praying that when i see the doctor next week for my biopsy results that she will have some sort of plan in mind in order to treat the things i have going on at the moment. If i can get the back sorted and my bowels moving again i am sure i can learn to live with the hernia and my CH attacks. Also with the help of new medication from the specialist i should be able to get these attacks under some sort of control this year.
I was having so many problems last year that i missed out on a lot of fishing. There was so many venues i wanted to visit and so many chances i missed out on due to pain all the time and my back not letting me move about. I don’t mind having an attack whilst out fishing as i can hide away in my bivi and not let people see me thrashing about in pain. When the attack is over i can then go back to fishing which is one of the only things that relaxes me and makes me forget about my illness and worries. It gets very frustrating when you can’t get out even to your local lake that is just 5 minuets down the road. I am determined this year to not let it happen again and to stop shutting myself away in the flat and start to get on with my life instead of waiting for the next thing to go wrong. Now i am starting to learn what is actually wrong with me i can now make a plan of action and make sure i don't make my condition worst and keep myself comfortable so i can get out into the fresh air a lot more and get on with some fishing.
