Well at least i managed a couple of days break from the beast and have remained attack free until the early hours of this morning. It has again left me feeling like i have something stuck in my neck, my shoulder is killing me from what i can only assume is a trapped nerve. I am getting the sharp pain up and down the spine again. My bowels and the problem i have been having seemed to start to get better and for the last 3 days i was getting improvement. This morning, after my attack, i noticed a sharp tabbing pain in my back behind my shoulder blade and now because of these pain i seem to be filling up with air again and my stomach and sides have started to hurt all over again. I haven’t a clue what is going on but i know i can’t go through the same again for yet another month. I will loose my mind! I am hoping this is just a step backwards and i will later improve and feel a bit better.
I normally feel ill after taking one of my injections and have wondered if it was the injections that is causing all these problems but the doctor assures me its not the case and i would have become ill from the injections from the first one if i had a problem with them. The only other person who may know is the specialist but trying to get my appointment with him is like trying to strike oil in the centre of town. I am hoping the clinic calls me with a new appointment before all the cold weather arrives for winter. I have been trying to keep myself busy but its not easy when your mobility is restricted. i clean the flat and have to sit down after 45 mins to take a break and get my energy and then continue. I end up taking around 10 coffee breaks just to clean a 1 bedroom flat, its just crazy.
Now that i have cleaned the flat there are no more jobs for me to do to keep my mind occupied so i have now decided to re-decorate the flat. It really needs to be re-decorated so i have asked my friend John to come give me a hand and i will pay him for the work he does. If i try to attempt to do it on my own it will never get finished like the last time i tried. I still have the patch on the ceiling where i never finished painting as i ended up in agony with my back and arms. trying to use a roller and stretching to reach the high walls and ceilings ended up with me not being able to move for a couple of days when my back became so bad it was like someone driving a nail through my spine.
I haven’t been having much luck with my health over the last few years and now to be diagnosed with a condition that is rare and has no cure is what i would call “Really Unlucky”. I know that as the years have gone on and the attacks become stronger and more frequent i have become used to having them as part of my life. Since 2011 the attacks become weekly and then daily and have only just started to reduce since i started taking the higher dose or Pregabilin at the start of this year. They have now started to get bad again over the last few months and what ever is causing my bowels to play up is also causing the head to play up and the attacks to appear. Now with winter round the corner and the daily temperature dropping fast it looks like i am in for another rough ride this year. I just wish the specialist would pull their fingers out so i can get the help i need so badly.
