After waking yesterday with no attacks and feeling slightly better i thought i was due for a break from the beast but then it happened again this morning in the early hours. 3am the beast attacked with a ferocious attack and pain like no other. The attack started behind my left eye and straight over the tope of the head into my neck. I suddenly burst into sweat like someone had turned the tap on and within seconds my clothes were soaked. My left eye started to close and the lump on the top of the head around my scar become so swollen i had a ridge across the top of my head.
This in turn started the back and neck to hurt like crazy and within minuets the entire left side of my body was in agonising pain and it became so bad that my skin felt as though it had been scolded or acid had be placed on it as it was just stinging so much. All i could do is scream in pain and agony and rush to take my injection praying that it would abort the attack. It took about 10 minuets before it took hold and eased the head as fast as it started. unfortunately it didn’t stop the pain in the back and over the left side of my body, this continued for at least 2 hours before i was able to move again with out pain.
This last month has been a complete night mare with all the attacks and pain i have been getting and still no help has been arranged for me. I am still waiting for the appointment to have the endoscopy to see why my food and liquid gets trapped all the time and why it gives me indigestion as soon as i eat something. I am also still waiting to see my GP about the lump in my back and find out why i haven’t had the appointment to have it scanned to see what is going on.
It doesn’t help having this heat wave at the moment as i feel constantly uncomfortable and sweating all the time/ When i am in pain i then sweat even more making me feel constantly dehydrated and end up having to drink 2lts of water every day. My stomach is still bloating up and i have wind pockets below my chest that sometimes can cause agonising pain as wind hits the different internal organs and constantly makes you feel very uncomfortable. I just wish something would happen soon as i don’t know how much more i can take it is driving me insane.
