Another bit of good news to report for a change instead of always doom gloom and pain and agony. These new tablets i am on, Sodium Valproate, seems to be working so far. I know its very early days and i am on a low dose but i have noticed a huge decrease in the amount of attacks i get and also i can feel something actually stop attacks as they try and start. Most of the attacks i am getting just of late are from the lower back, spine and neck. It seems what ever problem i have is aggravating my attacks as i suspected for some time now but nothing has shown up in any tests. As you can imagine i have been pulling my hair out trying to explain what happens to me and the pain and agony i get in the back and the difficulties in walking but every time i go and see my GP its on a day where i am able to see her and usually when its not so bad.
Finally something has shown up after all this time, a small ball like lump on the left side of my spine in the lower back and when i get the pain and attacks this is what is causing them to be so bad and crippling my back all the time. I know its not good celebrating finding a lump in your back but finally there is something for them to say there is the problem and start investigating and getting to the bottom of it all. Maybe finally they will get the answers they have been looking for with all the tests they have been putting me through just lately and all the bloods they keep taking from me. Don’t get e wrong i am not complaining about it as i think its great they are checking everything and making sure the don’t miss anything.
The treatment i have had from the hospital has been great and my specialist really knows his stuff when it comes to my condition. In that respect i have been very lucky as this condition is so rare that there is very little treatment for it and no cure so to find one of only 2 specialists in the UK that know how to treat CH correctly was a god send. Its typical though, the day i go up for my check up last week and the chance to show him the lump that has built up and get him to refer me to the correct doctor he turned out to be off that week so i now have to fly to my doctors and try and bring her up to date on all the treatment and problems i have been having for the last few months.
This should be fun as she doesn’t know anything about CH and the cause or treatment of the condition but she is good when it comes to following the instructions of the specialist ad that's why i have stayed with her. Also she understands about my bi-polar and makes sure that all my routines are kept and not changed so i don’t loose my mind and start worrying about things. Unfortunately the earliest appointment i could get is next Tuesday 8th July at 9.50 am. Its not long to wait so i am sure with the help of some ibuprofen and if i take it easy i can hold out until i see her.
I wanted to go fishing tomorrow but it has now changed again as the weather forecast say its going to rain most of Friday and the weekend but turn out sunny all next week. If i can get the referral sorted and pain relief by the start of the week i see no reason not to get out and do some fishing during next weeks sunny period. For my birthday i ended up treating myself to some new tackle and can’t wait to go out and give it a try. Also my brother bought me a new fishing rod for Christmas so i can get out and give it its first try out. Fingers crossed the weather forecast holds out.
