Friday 27th June 2014
Finally after having to put up with 2 days of sickness and diarrhoea my stomach has settled and stopped producing so much wind and bloating me up all the time. I am still getting some build up with the wind from the Pregabilin tablets but no where near as bas as it used to be. Also my bowels are moving normally and with the help of lactulose solution to keep water in the stool to keep them soft i am able to go to the toilet normally.
I am booked back into the day warm on Monday 30th June 2014 for a check up and a review to see how i have been getting on. I am still getting pains across the front of the chest and down the back but that is down to the nerve so i believe and they will take a look at that as soon as they have my head stable. I have started my new medication, Sodium Valproate 200mg twice a day and then they will build it up until the attacks stop all together. Thy may not even need to do that is he attacks don’t return as i haven’t had an attack since i started taking the medication (yet) but its only 1 day and anything can happen.
If the head does become bad again for a while i will then increase the tablets as the doctor instructs me and at the rate they tell me to do so as long as they continue to agree with my system. If they start causing side effects like the other tablets i have tried then i will just have t stop them straight away and see what is next the doctor will recommend. So far i am really happy that the tablets seem to agree with my system and don't seem to cause any problems apart from a bit of extra sweating and some nightmares. I remember from when i started the Mirtazapine i used to get nightmares for around 2 weeks before my body became used to the drug so i think it will be the same sort of thing. The only thin that bothered me was hat the nightmares were very violent and when i woke up i felt angry and very nasty at first but then calmed when i realised i was properly awake.
My appointment with my normal GP is on the 8th July 2014 so i will be able to update her as to what is going on and how i am doing with the medication and also she will be able to take a look at the lump that has appeared a the bottom of my back on the left of my spine witch is the main cause of all my back pain. Its the point it starts from and runs right up my back into my neck. Maybe she will know what it is and advise what treatment i need in order to sort it out. I am also going to push the hospital on Monday to get the physiotherapists to pull their fingers out and get my treatment started on my neck and left side of the body as i have a bad weakness all down the left side eve since my attacks first began.
It seems like finally things are starting to happen but i keep getting acid being brought up every now and again when i am sat drinking coffee or eating i don;t know why it is and i can’t take anything for indigestion as it reacts with my new medication so i am not quite sure what to do with out asking the hospital on Monday but at least i am feeling a lot better and a lot more positive. I am even planning a Carp fishing trip shortly as long as the weather holds and will allow us to go. I can't wait.
Saturday 28th June 2014
Yet again i spoke too soon as i was again woken by the beast this morning at 3am with a massive attack hat lasted almost 2 hours and has drained the life out of me. I feel so weak after having the attack i can hardly stand and walk about. Just making myself coffee seems like a really hard task at the moment but i hope my strength returns soon. My neck feels like it has been twisted around in circles and then untwisted again and is causing me a lot of pain when i move my head from side to side so the less movement at the moment the better.
Again the attack has left me with pain going up and down my back again right t the base of the spine and deep into the neck. The pain is like a straight line being cut down the left side of my back and is very sharp at times. I know its a nerve as i have had scans and tests and they couldn’t see anything yet i can feel it clearly. When i see the specialist on Monday i will bring it up again and ask they look into the problem as it is now getting worst and worst over time. It seems like as my head gets better and the attacks become less the after effects of the attacks are now lasting longer and staying around for days instead of hours.
At least the medication hasn’t caused me any problems so far but i am on a low dose at the moment and i know they will start to increase the dose soon if the head attacks don’t stop. The only side effect i don’t like at the moment is that it gives you knight mares when you sleep and i am talking violent nightmares. So violent you even wake up with palpitations as you think you are in some sort of fight or problem and then when you realise its a dream and that you are awake, and this takes a few seconds, you then start to calm down.
If the nightmares don’t calm down after a while then maybe i will have to ask the doctor for some thing to help me stay asleep as waking up in the early hours with a bad head is bad enough i don;t want to be doing it every day due to stupid dreams causing me problems i have enough problems as it is. Thank god i have to see my own GP on the 8th July as she will be able to take a look at my back and also advice me on what i can do about my sleep and the dreams i am having.
This new medication comes with a warning leaflet stating if you have these dreams you must report them to your doctor straight away as the dreams could become a reality and you can start to become violent during the day when you are awake and i don’t want to end up like that. I was having anger problems yesterday for some reason and every time i did something stupid like spill my coffee i would get so angry with myself i just wanted to break something and had to hold it in and bite my tongue so to speak. Lets hope it was just my depression playing up and nothing to o with the medication. We will soon find out after a week or two as its takes that amount of time for any medication to get into your system properly.
