Yet another early morning wake up call from the beast at 3am this morning. It really becomes annoying when you are woken up so early and no matter how hard you try you just can’t fall back to sleep again. The attacks seem to be staying in the morning period so far with only a couple happening during the evening. Most of the attacks in the evening are set of by my neck or so i believe. It seems like every time i get pain in the neck around 20 to 30 minuets after the neck has started playing up the head then follows and develops into a full blown attack. Until i can find out exactly what is happening to my neck and back i am just stabbing in the dark so to speak. I am still waiting for the physiotherapists to make an appointment for me so we can see what on earth is happening but i think they are waiting until i have had my endoscopy.
The endoscopy was requested as i have been getting food and liquid trapped when i am eating or drinking and it feels like it is chocking me until it suddenly moves down into the stomach with a pop. It’s a strange feeling and can be quite scary at times as you are unable to breathe properly until the food or liquid actually passes through what ever is obstructing it. I sometimes have to rub and bang on the front of my chest with my hand to help the blockage move. It also seems like it has been slowly getting worst over time and no matter how careful i am i will end up getting a blockage at least once per day.
Again i was back at the hospital yesterday to report the bad new that the different type of lithium they gave me to try also had a very bad effect on me and has set off my bowels all over again. Last time it took 5 weeks for it to get better and return to normal so i am praying it doesn’t last that long this time. Also when i took the medication my throat became very sore as did the inside of my mouth and my eye sockets. I also had a feeling like the inside of my stomach had been scolded and when i tried to open my bowels it was like shooting flames from your rear. I also noticed that my skin was feeling very tight and sore around the face and i was slightly swollen.
It wasn’t until i told the nurse when i went to neurology yesterday that they explained it was actually an allergic reaction and i could have died from it as i didn't seek help. I was told next time to ring 999 straight away as i was very lucky my throat didn't swell up and close stopping my breathing. I explained i didn't know what was gong on and thought it was just side effects but they explained i was very lucky to stop the medication when i did. I just can’t believe my luck when it comes to the different medication we have tried. 4 different medications and 4 different side effects or allergic reactions making me very ill. They have now changed my medication to Sodium to see if that will help control the attacks i am getting. You never know i could be fifth time lucky.
