Another painful and horribly tiring start to the week by being woken by the Beast again at 2.30am this morning resulting in sharp pain not just in the head and down the left side of the face but also down the left side of my back again and under my shoulder blade. As to why it keeps doing this i am unsure but what i do know is it is definitely the nerve that is causing all the agony and problems as i can actually feel it when it swells up. When i first started getting the attacks they were normally located around the eye area and the top of the jaw on the left side. I used to think i had bad tooth ache or an abscess but then it spread to above the eye and over the left side of my forehead.
I never forget the first attack i ever had as i was rushed to see a dentist as we thought it was the teeth or a tooth and even though nothing showed up on x-ray and the tooth looked good they still ripped the tooth out of my mouth and boy was that a painful experience. Even though they had numbed the jaw up and i couldn’t actually feel the tooth being extracted i could feel the nerve and as it was the nerve that was in trouble i could feel every bit of the extraction resulting in me screaming in agony. When it was over the dentist couldn’t believe the level of pain i was in and that's when the investigations all began.
13 years down the line and i am in so much trouble and pain all the time its starting to become tiresome. Having attacks every day and having to take medication for the rest of my life is not something i ever thought i would be doing. I have always been healthy when growing up and until i had my first attack i would rarely find myself ill. The only time i really would get ill was if i got the flu. Then i would get so bad and have such a high temperature i would start seeing hallucinations. I still suffer from high temperatures when i get a cold or the flu even to the point of hallucinating and even though i have the flu injection i still seem to suffer badly with a cold.
The last bad cold i had was just before Christmas and it has left me with what the doctor said was Tendonitis of the chest. The muscles and tendons of my chest seem to be swelling and are very sore and painful. I don‘t have any problems breathing and i don’t have any mucus on the chest or a cough. Each time i move about i keep getting sharp stabbing pains and ripping pains in different areas of the upper back and chest but mainly around the left side. I fist though it was linked to the nerve as the pain i get when i have an attack is similar and in the same place on the back but it could just be a coincidence and its the after math of an infection.
I have an appointment with my doctor tomorrow so will ask her advice as it has really been scaring me with the stabbing pains especially when they are at the front and feel like it is my heart causing it and not the muscles. I forget that the heart is actually one giant muscle and would be affected slightly and the doctor i saw over a week ago assured me there was nothing to worry about and all i had to do was take medication that would stop the swelling and slowly i would get over it and the pain would ease. So far it has been a week and i have been taking the Ibuprofen every day but still it is no better and in fact has got slightly worst. Lets hope it will get better soon.
I have to admit the attacks i have been getting lately have been scaring me as they have been very bad. Not only has the pain been so strong that it over powers my injection o i have to ride the attack for a period of time but they have also spread from the head into my body now and seem to be getting worst and spreading further as time goes on. It seems like it is overtaking the left side of my body and it wont be too long before the attacks will cause pain in the entire left side of the body making it so painful it will really be unbearable. They are bad enough now as they are stronger than any pain i know and are classed the most painful thing we can endure. Imagine the whole of my left side in that amount of pain for a long period. I really don’t think i could live like that all the time as they are bad enough now. I am hoping my appointment will come through for the specialist or at least for my scan and maybe we will find out why they are getting so bad and spreading so fast.
