I have bee going through hell since Thursday and it hasn’t stopped. I ran out of injections and had to ride the attacks when they came but unfortunately i ended up having 10 or 11 attack during Thursday and this continued into Friday morning when i went up to get my medication. When i got to the chemist they could see the state i was in but informed me they were having trouble getting hold of the injections and the had none there for me so i thought i would have to go all weekend with out a way of aborting my attacks. Thankfully after seeing the state i was in Phil from the chemist rang the company and told them that they needed the injections urgently and managed to get them by Friday evening at 16.30.
I had to ride out attacks up until that point and was in no state to walk back up the chemist so i ended up having to send my friend John up to pick up the injections for me. Since then i have been having non stop attacks and very strong shadows so the pain is not going it does ease of for a short while but the neck and back stays painful continuously all day long. Saturday was much the same, Starting with an attack in the early hours and still sore from the night before. Then even though i was able to abort 2 attacks i continued to get more attacks right up until late evening where i ended up having to beg my friend for some pain killers so i could get some sleep. Luckily my neighbour is suffering from very bad pain in the legs and has tramadol every day so he was able to give me some so i could take the edge of the pain and get rid of the worst of the aches.
With this help i was able to sleep and managed to lay in until 4.30am this morning where i was woken by the beast yet again with another attack brought on by the cold and low pressure weather front. I have noticed when ever we have rain or a low pressure front advertised in the weather i end up getting loads of attacks. Why this happens with the low pressure i don’t know but it seems to be a trigger for my attacks just like the cold wind blowing on the face sets off attacks so does the weather fronts. I can only assume it is causing pressure on the head as i can feel the nerve or something swollen over the top of my head.
If you run your hand over my head you can feel a line swollen from the front of the head, where i have a scar from being cracked open, to the back of the neck. It then goes into the neck and then comes back out on my back. It then runs down my back slightly to the left side behind the shoulder blade right down to the vase of my spine and into my bum cheeks. I have my scan coming up this Friday coming and hope they can find out why i am getting so much pain up and down my back. Especially in the lower back area. This then starts to cause pain in my neck that then sets off the head all over again. If its not something triggering the attacks its the back setting them off. Why my back has suddenly got so bad and why the attacks are playing up so much is a mystery.
Normally after having an attack and aborting it with an injection i do get a sore back and neck but this usually eases off after a few hours leaving a mild shadow and feeling of pressure on the left side of the head. Lately the pain is staying there even after the attack and i can spend up to 3 or 4 hours in so much pain i am sweating buckets and being sick. The last few days have really got to me and worn me down. I have no energy left and feel very weak and sore. Every movement ends up with pain in the back , neck and head so i try and stay as still as possible but even then i can end up getting an attack from not moving around as the back ends up going stiff and hurts like hell. Then, yet again, it will set off an attack. I can’t win!
