Thank god i managed to actually have a proper lay in this morning and didn't wake up till well gone 7am this morning. Thankfully i didn't get an attack from the beast when i did wake but i do have some little shadows at the moment so wont count my chickens just yet. The last time i got excited i didn't get any attacks during a morning i ended up s[ending the rest of the day battling with the beast so i am praying it won’t be a repeat of that episode. Getting attacks during the day is just as bad as getting them in the mornings except you always end up having more than one attack if they appear during the day.
I can feel the attack trying to build as the nerve is still tender from yesterdays attacks and i can feel the pressure on the left side of the face. The nerve runs over the top of my head into the neck and then down my back behind my shoulder blade slightly to the left of the spine. It doesn’t help i am still getting pain in the base of the back right across both sides. This is the pain that they will be scanning for when i have my MRI next Friday morning. I can’t wait until i have had the scan as i really want to know what is causing this pain and why it makes life difficult to walk.
I am hoping that as soon as i have had the scan and got the results the doctors will then be ale to put a plan of action together and put me on the right medication to do the job. I am praying its not something serious as its bad enough having to deal with CH let alone any other condition but something inside tells me i am going to have a shock and its going to turn out to be arthritis just like my mother has suffered with for years. Not only the arthritis runs in the family but also heart conditions too. I have been diagnosed with very high cholesterol when i had my last blood tests so i have the feeling that in the years to come i will end up with problems with my heart or even end up with angina due to the cholesterol building up in the tubes.
Lets hope that things won’t turn out as bad as i fear and that i worry for nothing but i was right about my head, years i was telling them and for years they ignored me putting it down to depression and drink and drugs especially when i haven’t drunk alcohol in over 14 years. I was told it was migraines and that alcohol makes them worst, i was also told it was stress related as when i get an attack i become blotchy all over my skin so they thought i was having some extreme stress attack but in the end they were all proved wrong and finally they found out that i was suffering from CH and there was noting they can really do except try and help me stop the attacks from appearing as the condition isn’t well enough known to have a cure yet.
I was told clearly its a condition that can’t be cured and i will have to learn to live with for the rest of my life. Ever since they started the medication i have ended up with other health issues due to the side effects and there is not much i can do except wait for doctors to change the medication each time. So far i have tried 4 medications and only 2 are working. The other 2 put me in hospital and almost killed me as far as i am concerned. Lets hope the next medication change will be a bit better than the last 2 attempts.
