Tuesday, 22 April 2014

A nice lay in to recharge the batteries…..

Thank god i managed a nice lay in this morning and wasn’t woken by the beat during the early hours. I didn’t get any feelings of pressure on the side of the head or did i get an shadows lasting through the day yesterday like i normally get when i am having attacks. The shadows can be just as annoying as the actual attacks as when they appear you know what's going to follow the shadow and is only a matter of time before you are in pain and agony. It’s nice to actually have a lay in bed for a change and re-charge the batteries, so to speak. Getting up in the early hours all the time takes it out of you and there are some days where i feel like the walking dead.

Even though yesterday was wet, grey and miserable i didn’t have anywhere near as many attacks as i thought i would have. Normally when the wet weather comes and low pressure fronts come across the country it always seems to effect my head and make it play up something rotten. Thankfully it wasn’t as bas as it usually is and i managed to get away with just the odd small attack and some strong shadows. It is still a big improvement compared to last year and the year before that. When ever the summer months come i normally get less attacks due to the warmer weather and less low pressure fronts hitting our part of the country but as winter returns so do the attacks.

I have still been having big problems with my bowels and constipation. I am producing more wind than a turbine and am in constant agony all the time just lately when it comes to my stomach. I have what feels like tense muscles on either side of my stomach  and my back aches like i have a kidney infection but there is no sign of infection in my urine or bloods as i have numerous tests done both at the doctors and the hospital when i was rushed in. Why my stomach is doing this i don’t know and i have tried everything i know to get rid of the wind and try and ease the pressure in my stomach so it doesn’t ache and feel uncomfortable all the time.

I have noticed the last couple of days that when i go to the toilet to open the bowels i can’t actually feel my stool coming out. It could be because it is so soft it is actually like toothpaste. I was given some Fibergel from the doctors to see if that will help along side the lactulose solution and try and get my bowels working normal again. It could also be because of the muscles in the back. Each time i get an attack i noticed that the muscles in the back keep on playing up and are tense all the time as i am in pain. Then when i try and open my bowels i don’t have enough strength left to push out the stool. If it continues i will have to go back to the doctors once again and see if there is something they can do as this has been going on too long now and i can’t get on with other things whilst this is playing on my mind all the time.

I am due to go back to hospital on the 29th April to see if we can find another drug that will help with my head and get these attacks under control but whilst i am having problems with my stomach and bowel i think its really a bad idea. If it causes me any side effects they may think my bowels are down to medication and make things worst. I am also booked in for May 1st to go and have a heart monitor put on me for 24 hours to see if i have any problems with my heart and try and find out why it keeps racing off all the time. I am also burning up every now and again, i don’t know if it is connected with the bowels and stomach but it seems weird that i suddenly break out in sweats even though i am not having a CH attack.