Unfortunately just over a week ago, after having an attack from hell, something happened to my neck that pinched a nerve or trapped something that caused my attacks to go off non-stop. Attack after attack, hour after hour of agonising pain until finally an ambulance came and rushed me into hospital. As soon as i was there they started giving me strong pain killers but nothing was helping to stop the attacks. They then placed me on lithium and steroids and finally the attacks started to become under control once again. So now i am on Lithium tablets and have to have my blood checked every 2 weeks as well as the pregabilin tablets along with all the other medication to see if it will eventually take control of the beast and stop the attacks from happening.
Since i have been home i have had 5 attacks already. Now when i was in hospital they calmed right down and i was getting more rest in one week than i had in a whole year. now that i am back home its back to the same old routine. I am slowly decreasing the steroids as i have to come off them within 4 weeks and also slowly decreasing the pregabilin tablets as they give me real bad side effects. The trouble is by decreasing the medication i am seeing more attacks than i am used to and just to top it all off my bowels have decided to really play up and i have constipation like i have never experienced before. I am bloating up like a balloon and my stomach is in constant pain. I am still able to eat and drink and i can pass fluids but have trouble when it comes to opening my bowels.
I think most of it is down to all the medication and pain killers over the last 2 weeks and its now having an effect on me. Hopefully by not taking anymore pain killers this will start to sort itself out but i am not going to take a chance and will be booking in to see my doctor urgently tomorrow morning as i feel worst than when i actually got admitted into hospital, surely that's not right.
I have to say they were brilliant in the hospital they were checking everything to see if they could find out what is happening. Now that they got the head back under control they didn't need me taking up a bed that is used for emergencies only and i now have to go back as an out patient for all the other investigations they are doing. They are checking my heart as it keeps racing off on its own accord and even after having treatment in the hospital it still keeps doing it. They also have to check where i am with my head and how many attacks i have been getting over the last week and then maybe we can try different medication to get it sorted. I now need them to find out why my bowels are so bad and why they are playing up as i am constantly uncomfortable and getting pains up and down my back.
The hospital have run all the tests they needed to including 2 different MRI scans of the top and bottom of my spine and hopefully they will be able to find out why all these problems in different areas are appearing. It just feels like ever since i was diagnosed with my condition its been a down hill slide and i really need to try and get on top of things. If this continues i am not going that have the strength to get well as i am constantly fighting attacks and pain all the time and i am sure most people come out of hospital feeling better not worst.
