What a night i have had, so far i have had six big attacks all starting from 11pm yesterday evening and have run through the night and into the early hours of this morning with my last attack finishing only 2 minuets ago, at 6.30am. All he attacks have big nasty ones that not only caused pain in and over the head but also right down the side of my back on the left side and also on my left shoulder and left chest muscles. I feel like death warmed up as i have had very little sleep due to the head always waking me up just after i manage to drop off.
The worst part was that each time i woke up it was to a big attack so i ended up not going back to sleep so i didn't have to wake up into an attack. I know it sounds crazy but since i have stayed awake i haven’t yet had another attack. Because i kept forcing myself to go back to sleep after an attack must have had an effect on me as i just kept waking up and then having an attack within minuets of opening my eyes. I don’t get any other warning signs apart from being wide awake as soon as i open my eyes and then the attack seems to build within seconds.
It is also having an effect on my back and the last few days have been agony when trying to walk to the supermarket and bring shopping back to the flat. Especially when carrying a heavy shopping bag i end up in real agony and have to stop around 10 times before i manage to get back to the flat and considering my flat is only 10 minuets walk from the supermarket it is just crazy. Even with out any shopping, on the way there for example, i sometimes end up getting sharp pain in the centre of my back and then after a couple of minuets walking it spreads into my bum cheeks and then the lags also start to hurt.
The last time i had all this was when i was getting problems with my bowels. This was due to the strong dose and combination of medication i was taking and now that i reduced my Pregabilin to ease the side effects and the bowel problems i seem to be getting more attacks again. Not only have the attacks increased but now i am getting worst pains in the back and even more problems when i am walking. I know its not the medication causing it and my blood tests showed nothing out of the ordinary apart from high cholesterol so it must be the nerve that is causing all the back and walking troubles.
It is probably the same nerve that is playing up in the head and causing my condition to be so aggressive. I am hoping the neurologist will be in touch soon with my new appointment and maybe then i will get some answers as i am getting no where with my normal doctor. It’s crazy as it takes 2 weeks to get a normal appointment with your doctor and can then also take up to 4 weeks if they are very busy like mine has been for a while. By the time you get your appointment what ever was wrong with you may have eased away or got slightly better so by the time you actually get seen they are not seeing the full extent of the problems. You can’t keep ringing up for emergency appointments, to be seem the same day, as they get fed up with this and threaten to take you off the register so you have to find a new doctor.
How do you know what is an emergency and what isn’t? When you are in pain as far as you are concerned it is always an emergency so o think the way the doctors have it set up at the moment is crazy and trying to get appointments is madness. Waiting for hospital appointments is also crazy as the NHS has such long waiting lists. I am still waiting for my MRI scan on the spine and neck to see what is going on and have been waiting months so far. I know i won’t hear anything until the new year and it will probably be about summer time before i get seen by them and have the scan. As soon as i have the scan and the doctor gets the results she will be able to finally see what is going on in the neck and shoulder and also at the base of the spine to see why my walking is effected so much. I am still placing my bets on the nerve that controls the left side of the body. I am sure it is that nerve that is damaged and has been causing all these problems.
