Yet again i have been woken by the beast at 3.30am this morning with an attack so large it scared the living daylights out of me. I thought i was about to de at one point. The pain was so strong it made the ringing in my ears so loud i couldn’t even hear the TV on in the back ground. Again the attack started at the front of the face just above the eye spreading up and over the top of the head into the back of the neck and down the side of the nose to the top of the jaw. Sometimes it actually feels as though you have an abscess in the mouth but there is nothing there when you check. The pain continued to grow for well over an hour until finally the injection took hold and aborted the attack.
I have noticed that sometimes when i take the injection my chest suddenly becomes tight and it becomes hard to breathe properly. It tells you that this can sometimes happen in the leaflet you get with the injections telling you how and what to use them for. It also says that this feeling is normal as long as it doesn’t happen every time. To me it feels as though the heart is suddenly struggling to do its job and that’s why the chest becomes so tight especially on the left hand side. A scary thing to happen if you are not expecting it and especially when you are having an attack you just think the worst will happen all the time.
You would think i would be used to the medication by now but no matter how long i have been suffering from this condition i don’t think i will ever get used to the horrible feelings it sometimes gives you and the scary feeling you get after you have taken it and when the chest tightens. Maybe there is other medication that won’t give you these horrible side effects, i will have to ask the specialist on our next appointment in June. I am still waiting for the new appointment for my EEG examination and test as the hospital had to change the appointment due to the patient transport refusing to pick me up because the appointment i had was after 5pm and the patient transport stop at 4.30pm. If you ask me this is just madness that they have to change appointments just to please drivers as they don;t like to work late.
I have to be grateful of the warmer weather at the moment as it seems to be having the normal effect on my attacks as it did a few years ago. When it gets warmer the attacks become less and less and i end up having more pain free time. It has taken it’s time to start improving but finally it has begun. I think the steroids i was on when i was in hospital last must have helped it get back into its normal cycle and i am hoping that as June and July starts the attacks will be almost non existent, but i think that's a little too much to wish for. I should just be grateful for the smaller breaks i am having at the moment and hope that no more attacks will appear today.
