It was about 3am when my eyes opened from a nights sleep and at first i was unsure why i had suddenly woken up so early. Then i sat up in bed and looked towards my mobile phone to see what the time was and as i turned my head to the right my neck clicked loudly around 3 or 4 times. Each click was like and electric shock through the whole of my body and scared the living daylights out of me. At first i thought i had damaged my neck and had to lay there as still as possible as i didn't want anything else to happen. It was then that the pain began to build behind the left eye socket and at that moment i knew the beast was here and an attack was about to start.
I started to move again and jumped out of bed and moved into the living room to take my injection as quickly as is possible to abort the attack. Normally i keep some injections by the side of the bed but for some reason i didn’t take any with me last night so i ended up having to deal with the first part of the attack before the injection kicked in to abort it. The pain behind the eye was again so strong that my whole body just burst into a cold sweat and it was pouring off me like someone had turned on a tap. The pain then travelled over the top of the head following the line along the scar that i have from when my head was split open. It then travelled over the top of the head and into my neck.
All i could do was hold my face and pray to god that the pain would stop soon. As the injection started to work i could feel my chest tighten and my breathing become shallow. I tried to concentrate on my breathing and try and ignore the pain but its very hard to ignore something so strong. As soon as the injections took over the pain stopped just as fast as it started and the attack was gone. It left me with sharp pains down the back again and of course in the neck as usual. No matter what i try i just can’t seem to stop the pain in the neck all the time. This pain seems to travel down the top half of my back just under the left shoulder blade and also across the front of the chest towards the heart. It must be a muscle or a nerve that is trapping somewhere in the neck that is causing all this.
When i was at the hospital last time they started to look into this problem and i am now awaiting contact from the physiotherapists to see if there is something that can be done as it becomes so painful i just can’t move about normally. I also get pain at the bottom of the spine that spreads right across both sides of the bottom of the back and also spreads into my bum cheeks, especially if i am carrying something heavy like a bag of shopping. I have noticed that the back pain and shoulder pain that comes from the neck always seems to get bad when there is wet and cold weather. I am not sure if it from arthritis but something is surely making it a lost worst than it normally is.
I am at the hospital on June the 2nd (next week) so i will have a chance to talk to the specialist and bring up the things that have been worrying me. I had my appointment with the doctor yesterday but she is very reluctant to do anything with out the specialists say so. This makes things very hard to try and get treatment even for the most simplest of complaints as the doctors doesn't want to make my condition any worst than it already is. I know i have been referred for an endoscopy so they can take a look at what's going on in my tummy and why i keep getting liquid and food trapped at the top making me feel like i am choking. This is going to take a while before i get my appointment and they take a look so until then i just have to put up with the horrible feelings i get when it does trap.
I don;t know if it has anything to do with the head and the nerves, i don’t think it is linked to the head but you never know. Illness can sometimes cause some strange things to happen. At least the hospital and doctors will be checking it out so that puts my mind at ease for the time being. I am hoping they will get to the bottom of things quickly as it is bad enough suffering from one illness let alone 2 or 3 different complaints. My bowls have started to improve and i find myself in less and less pain each day that passes. Finally the wind has started to shift and the bowels have opened properly so hopefully these stomach pains and wind problems will soon be a thing of the past. As to why it blew up into such a problem is beyond me and i still think it was down to all the medication i was on. At least it is starting to go now and things are getting better. I just wish my head wouldn’t keep playing up.
OK i am getting a lot less attacks now that i have had in the last 2 years. It seems to have gone back to the old cycle where in winter it is very bad but as summer comes and the warmer weather it gets less and less and i find i have more pain free days than i did before. I am still only getting a maximum of 3 pain free days in a row but at least the amount of attacks i have been getting are half what they were. That’s one thing i have to be grateful for. Let’s hope the improvement continues and we can finally get this beast under control.
