Hooray final got my computer back online after making a stupid mistake with he bank and then having to wait a couple of days with no computer connection was driving me insane. It’s surprising how reliant we become on then with e-mail and messaging each other not to mention Facebook and Twitter. Now the mistake is rectified i can get back to Normal business and try and get my head under control. I am still getting the early morning wake up call at around 2 or 3 am every morning. Sometimes its just a shadow and i can shake it off but other times i end up having full blown attacks for well over an hour and that time in the morning you are not at your strongest but somehow have to deal with what i can only describe as hell.
he amount of attacks in the morning i have now lost count there has been that many but there has been an improvement this year as it hasn't been so cold this winter it has really given me a chance of a break and hopefully seek help to get it under control. They have tried me on a new medication known as Topiramate it is supposed to be for people who suffer big epileptic fits and the warnings that come with the medication was unreal. Well i was in for the biggest shock of my life.
I took the tablet and settled down on the computer trying to do some work on my web site and my eye sight started to go strange so i stopped. I decided to do a bit of cleaning and cleaned the kitchen but when mopping the floor my heart started to really race hard and i am not talking like a normal panic attack it was like it was about to jump out of my chest. I dropped the mop ran into the living room and got on my oxygen just in case something was happening.
This then calmed down after an hour had passed and i kept on concentrating on my breathing. I then continued my day onlnly to have another atack about 20 minuets after the first one but not as severe. These attack kept on coming right through the day and i was also becoming very confused and agitated. I continued the tablet the next morning to see if it was just something that happened that day but again it set me off and i became so confused i was loosing things and forgetting what i was doing. I would walk miles and not know why i had gone.
I even had a full fit where i fell to the floor shaking as if i was an epileptic and it was my friend John that saved me that day. I continued these tablets for a week to see if the would settle down but i became another person. I didn't know what time of day it was or what year we was in i couldn't even work out hoe to make a cup of coffee with out burning myself every time. My friend John had to stay with me just for my own safety as all the time i was having fits ad becoming like cabbage making sure i actually whent to the toilet and not did it where i was standing because i couldn't work out where the toilets where, and i was in my own flat.
As you can imagine i have stopped taking these tablets and advise anyone if they are ever given them do not take them. You cant stop shaking to the point of wanting to chop off your own hands and you cant stop wetting yourself and even soiling yourself when walking down the street even to the point where you pea blood. These tablets are one of the most dangerous tablets i have ever taken. Ok maybe they work on epileptics who are having bad fits but that's not what i have. I suffer CH its completely different. I understand that they have to test different medication before we find the right one but i don't want to die whilst trying, I would rather stay with the injections and the pregabilin i an on now and suffer when i stiffer than go through all that again.
So its back to the drawing board and now i have to wait another 4 months to see the specialist to get the next medication. I will try and leave him a message to tell him what happened and maybe i will get seen sooner but i know he is so busy. So in the mean time its get on with it and get myself ready for a wicked carp fishing trip. yeh ha!
