I have been woken by the Beast yet again his morning at 2 am and has left ne with a strong shadow so there is just no way i could go back to sleep. All i have been dong is laying on the sofa nursing my eye with a cool towel waiting for the pain in the back to ease away so i can move around. I have noticed my balance has gone all weird and i keep bumping into things with my left side so i have to be careful.
Why it has suddenly gone like that i don't know it seems to be ever since i went fishing on Saturday and as we fished through the night i ended up having 2 nasty attacks during the night and thank god John was there with me as my back locked in a strange position and i asked him no matter how much i screamed to pull me up and straighten me out and t worked. Ever since this strange attack my balance had gone all funny so i will have to report it to the doctor on my next appointment.
Finally the letter came for my MRI scan on the base of the spine to see what is causing me all theses problems when i am walking and why there is so much pain. It could just be muscular and i am praying that is all it is but my mother suffers with very bad arthritis and started suffering the same way i have started so its a bit worrying that its in the family and i will have no choice but to suffer with arthritis when i am older. At least we now have an appointment on the 28th March 2014 at 11.20am so i will have to make sure i get there early so don't miss my slot otherwise i could be waiting another year or 2 for the next available appointment.
I had my meeting with Helen from CAU who is my share-care nurse and if i have any major problems i am able to ring her and she will try and help as much as she can. She has given me the addresses of some companies that deal in caring in the community and also cheap transport to and from the hospital as apparently due to my condition i am entitled to the transport in order to attend my appointments. This is all new to me and i didn't know until yesterday day so i will give them a ring a few days before the appointment and arrange transport that was as can’t keep relying on my mother and step father who are both ill themselves so its a little unfair to assume they will always come and take me.
On a sad note Helen will be retiring from CAU soon as she has been one of the best share care nurses i have had to date and its such a shame to loose someone you can actually talk to and know that they are not ju6ts going to brush you off or give you a load of BS they tell you how it is and what you have to do. I will be sorry to see her go and she will be surely missed.
