Yet Again i have been woken up at 3 am this morning by the beast with another massive attack. I honestly thought my head was about to explode it was that strong and the pain i get in the neck and a feeling like i have a ball or something stuck in the joint of the neck is an experience i would rather go with out. Every time i move my head it feels like the bones are grinding together and causes sharp shooting pains to run up and down the spine. The eye has swollen shut once again and the sweat is pouring off me like there is a leak in my water works.
Not to be content with just one attack the beast decided this morning it would wake me with 3 large attacks one after the other. About 20 minuets after the first one had finished and i was recovering my strength when i could all of a sudden feel another one building. The trouble when they are so close together like this is that i can’t take another injection so soon after taking the first one so i end up having to ride the full attack out only with the aid of oxygen. Don’t get me wrong the oxygen does help to reduce the length of the attack and can sometimes help stop the attack building if you use it when you have the strong shadows. When you are woken straight away with an attack it doesn’t give you a chance to take any precautions so you have to deal with the attack head on (excuse the pun).
3 big attacks, one after the other, has completely drained my energy and now i feel like i have been in a boxing match for the last 3 days with no rest. I am now left with a sore head, on the left side, with the scar swollen up like a lump and an extremely sore neck. I keep getting shooting pains down the spine again and pain in the back. These always seem to happen after big attacks and i have come to know them as the side effects of the attacks. When i try and walk its like lifting lead weights as my legs seem to have become more heavier also i get pain in the lower back with each step i take and the ache and pain seems to spread into the butt cheeks. No matter how much i try i can’t seem to get rid of these side effects after an attack and have to wait until they ease away on their own witch normally takes a couple of hours.
There has been a huge change in the weather so i am wondering if it is that that has caused me so much trouble and pain. We were enjoying a nice heat wave and a hot summer and are still enjoying the heat but it now seems to be on the change. Yesterday around 3 or 4 am we had torrential rain and a storm like no other with loads of thunder and lightning. This seems to be the reason for my attacks and with more of the same forecast over the next couple of weeks i am sure i am going to have a lot more attacks before this cycle is over. I have started to notice that after something has set off the attacks and caused them to start then i have to let them run their course. It seems like each attacks is stronger than the last and they have to reach a peak.
Once this peak is hit then the attacks stop and i end up having a couple of days pain free and no attacks. This must be what they mean when they say some people suffer with attack cycles rather than on a daily basis. I am hoping this is the case and that the medication i am on is starting to change the way the attacks work and hopefully with the help of other medication that the specialist will recommend i should be able to put the beast to sleep and stop the attacks once and for all. I will have to chase up my appointment with the specialist as it is now over due and i really need to see him to get some extra help in order to cope with the pain all the time because at the moment i am just no coping. It would also be nice to try and find out why my back is hurting so much and why it is effecting my walking and movement. It seems the longer i leave it and the longer it takes to get seen by a specialist for the back the worst it is getting.
Well as you can see i have decided to change the design of my blog and make it a bit more easier on the eyes. It was giving me a headache looking at the bright colours all the time so god knows what it was doing to others. I have decided to keep this daily blog and incorporate it into my other web sites and link them all together so it is easier for people to find the information they are looking for. I will be continuing my daily blog as well as doing a monthly update blog also that just covers the key points and what is going on with my treatment.
I enjoy doing the web sites as it is the only release i have and keeps me from climbing the walls and going nuts from being shut away all the time. With the attacks still coming when they feel like it and are usually big attacks it makes life very difficult if i want to go out any where. Thankfully being connected to the internet helps me keep busy and keeps my mind active so i don’t just dwell on my situation and end up making myself depressed and ill. I am able to stay connected to family and friends in order to get the support i need , when i need it. There are days where i can’t even face going online but these day i tend to sleep away and stay locked in my room. I know its not healthy but i don’t really have any other options.
There is one thing that does seem to work and keep me calm and also helps to keep the attacks away. Its very strange how this happens and maybe its because it keeps my mind busy and i don’t think about my attacks. Fishing seems to be a miracle cure and for some strange reason, no matter how bad my head is, if i am busy fishing the attacks seem to stay away. Don’t get me wrong they don’t completely disappear and i have had a couple of nasty attacks whilst fishing but am able to disappear under my umbrella or into my bivvi, take my injection and when the pain is gone return to fishing. It seems to me that by keeping my mind busy and concentrating on fishing it helps to keep the attacks from building most of the time. However i do end up paying for it in the evening or the next day as the attacks seem to always return stronger after i have had a days fishing.
