I wasn’t woken just by one visit from the beast this morning but by 2 different attacks all within 20 minuets if each other and all were big attacks that i had to ride out until the next one started. It felt like as one was finishing the next attack was building. Why it has suddenly become so bad i don’t know. I am sure my back has something to do with it and i think it could be also helping to set off the attacks. The pain i have been getting in my back and up my spine has been getting worst over the last few weeks but i wasn’t expecting what happened this morning. All through the night i have been tossing and turning as i just couldn’t get comfortable due to aches and pains in the back all the time. Each time i moved in bed i would get shooting pains down the spin into the bottom of my back and then i would wake suddenly.
It could be something to do with the nerves i suppose as i can feel something pulling down my back that also effects the base of the neck and when it pulls it send a sharp pain into the neck and that in turn has set of the bigger attacks and caused the beast to show its face. It’s starting to look like i have a big problem with something in my back so i am going to ring the doctors today and book another appointment and see what the doc say about it. All i know is i can’t go on like this, problems with my back causing me even more problems with my neck and head. Its bad enough having to put up with attacks now and again each day but to have to suffer with the back all night and then to be woken by the beast on top of it is just too much. Lack of sleep is making me feel very lethargic and the tenderness of my head makes every sound louder than it actually is making my head very sensitive to noise and light.
On a better note, my mother has finally had the operation to remove a kidney due to cancer and is now in recovery. She has been in recovery for 5 days due to the other kidney being lazy and not taking up the work of the missing one so they will keep her in until her kidney function is normal. My thoughts and prayers have been with her every night as i know what it is like being stuck in hospital and its not the best experience anyone should have to go through. I know it won’t b long before she is back to her normal self and will be fishing with us again. She will have to rest for a couple of weeks after coming out of hospital but i know what she is like and it will be like trying to make hyperactive cat stay still. She hates to be limited so i know it won’t be long before she is planning our next fishing trip as a group.
With all this lovely weather at the moment and the heat wave we are getting in Cardiff you would think that my attacks would be behaving themselves and not causing me problems but for some reason the last 2 weeks have been non stop again. Almost every day i am having to contend with one type of pain or attack. My back has also been just as bad so it could be that the pain i am getting in the back is also aggravating something connected to my neck or head and bringing on the attacks. Well i am just hoping they will improve soon and they start to reduce in the number of attacks once again. I can’t wait until my next appointment with the specialist to let him know what has been going on and see if he can shed some light on why my back is getting just as bad as the head.
Well with all the nice weather it’s fishing time again. I have been putting it off due to my mother being in hospital and all the worry and stress of it all. Now she is over the worst and getting better, even though its slower than we hoped, i will now go fishing again and have planned a trip down to one of the local lakes with 2 of the new members of Fishing Adventures Wales. We will go out Wednesday as there is going to be a bit of cloud cover witch will help the fish with their feeding as when it is too hot they don’t seem to feed as well as when it is cooler. I can’t wait for the fishing trip to be honest as i have just finally purchased the rest of my fishing tackle and now have “everything” i will need. Boys and their toys!
Fingers crossed and lets hope that these attacks will start to die down also and allow me the freedom to do the jobs i have to put off because of the attacks. Its getting to the stage that even doing the house work is becoming difficult due to the back. neck and head all the time causing be agony. I am now even starting to think about getting myself a powered bike just to get around on and do my shopping with. I will even go for one of those little electric shopping carts or bike you can get for shopping in and around town. I can’t remember when the last time i went shopping in town was? its been that long ago! Its the only way i will ever get to go shopping in town again as at the moment i am just too scared of having a big attack in the middle of town. I don’t mind a smaller attack that i can abort with the injections but you can’t pick and choose the level of attacks you get. If i end up with a big attack that over powers my injection i will be in deep trouble being stuck in the middle of town screaming in agony and smashing your head against the ground or wall depending if you are still standing when the attack happens. I don’t think shoppers around you or even the police will understand what is happening until you are in such a state you are able to explain it to them. It also gets annoying having to explain your illness time and time again to different individuals who are just too lazy to read your records, no names or services mentioned even though i would love to slate them off at the moment i won’t!
That’s all for my blog today as it’s time to get back to the grindstone and start my house work. Finally the head has stopped aching from the last attack that finished at around 6.30 today so its been nearly 2 hours of aches and pains to deal with since it started. I have to also get my fishing gear ready for Wednesday so its going to be a busy day today. Lets just hope the beast stays asleep and i am able to enjoy the weather instead of being shut away all the time waiting for the next attack.