So far i have been lucky over the last couple of days as i have only had a couple of attacks but have run out of my injections. the chemist is having problems getting the amount i need from the manufacture. For some unknown reason they are reluctant to give out so many injections as they class it as a hospital dose. It sounds crazy especially when the order is backed up by a script from my doctor. They have told me they should arrive by this afternoon so i am hoping i will be able to make it through the day with out any more attacks as i was woken by the beast at 4am as it is. It is murder having to deal with an attack and ride the pain for the full length of time. Sometimes it can last for 10 minuets and other times it can last anything up to 1 and 1/2 hours. When you are in that much pain for that amount of time all you want to do is die. You just want the pain to stop no matter what it takes.
It shocks me that i managed to put up with these attacks for so many years and most of them with out the help of the injections and medication. I used to ride the attacks for the full amount of time on a regular basis and have developed some ways of dealing with the pain. One way is to massage the top of the head vigorously as if to create static. this seems to help calm the pain to a manageable level. Another way is using my electric fire and place your face close to it so the heat level matches the pain level (this is not for the faint hearted and i don’t recommend you try this unless you know what you are doing as you can cause serious burns) as soon as you match the level you hold it for a couple of minuets and then slowly move away from it. As you move away and the heat goes down so does the pain. i know this technique sounds crazy but it actually works, why i don’t know, but it does.
I have an appointment with the doctors on Thursday morning to have my blood tests done. They are checking for gout, cholesterol and for the joints to see if i have arthritis or something similar that will explain why i get pain in the back and the legs turn to lead when walking. On Monday afternoon i was walking up to the chemist to find out what was happening with my injections when suddenly the pain in the back became stronger and i started to loose the feelings in my legs. It felt as if they were going numb just like my left arm keeps doing when i trap the nerve. Talk about a scary experience. I struggled to get to the chemist and even he was shocked to see the state i was in and almost ended up calling an ambulance but i told him i was ok. I sat down for about 10 minuets until i could feel mu legs properly again and off i went home.
I have some strange things going on with me. Not only do i have to contend with my head and the attacks i get but also back pain, problems with the bowls and trapped wind travelling around my internal organs causing agony, trapped nerve in the arm, problems when walking and my legs going numb. If i was a car they would have scrapped me by now and if i was a dog they would have put me down a long time ago. i don’t know what to do any more. I keep on complaining to the doctor but it seems like nothing is happening as it is taking so long to find out what is going on with me. i am hoping the blood tests tomorrow will give us a clue as to what it is causing all these problems. trouble is i have to wait another week for the results and up to 2 weeks for some other results the doctor mentioned but i can’t remember what they were.
