Again the Beast snuck up on me at 3 am this morning. It’s getting to be very annoying being woken up at 3 o’clock in the early hours and not being able to get back to sleep. Why can’t it be at 7 am instead at least i would never need am alarm clock to get up early. Yet again it was another strong attack that has left me nursing my head and neck and again i have bad pains in the back and up and down the spine. Well at least it’s only until next week i have to wait to get my blood test results and hopefully find some answers as to what is going on with my and why i am having so many problems.
I am again going to try and chase up the neurologist today and try and find out why they keep cancelling my appointments and when is the soonest i can see the specialist. I will explain all the troubles i am having and what is going on and just maybe they will be able to pull their fingers out and give me a confirmed date to see Dr. Pickersgill, the specialist who knows all about CH and how to treat it. The last time i spoke with him i was amazed at his knowledge about the condition especially as it is such a rare illness and they have no cure for it as of yet. He seemed to know everything there is to know about it and how to treat it with all the different medications. It has taken me years of reading and research to find out just 1% of what the doctor knows. That’s why they call them specialists.
The weather at the moment is not forecast in my favour as there seems to be quite a few days where we will have low pressure fronts moving across the country and i know this will end up setting off some nasty attacks. The worst thing is knowing what the weather brings and how it effects me. I end up locking myself in my flat, not going out as i am too frightened of having a big attack whilst stuck on a bus or in the middle of a shop or town. Not to mention the fact that i can only walk about 100 to 150 yards and then my back starts to play up and my legs starts to go funny and become numb. I think the legs going numb is the scariest part of all and not knowing why it is happening.
Well for now there is not much i can really do about it and have to wait patiently for the results. I know for sure it has something to do with the nerves and that's why the CH (Cluster Headaches) have become worst than normal as i think its causing something to trigger the nerve that in turn triggers the attacks. It wouldn't surprise me if it wasn’t arthritis causing all these problems and the nerve trapping between the joints. I just wish i could just have a year out, with no pains or aches or anything. Just one more year to do what i can before my mobility starts to go completely. I am hoping it doesn’t come to all that and it’s something silly but for some reason, with all these problems going on, i know deep down i am in trouble and really need medical help. The worst thing of all….. is all the waiting for results and appointments, it’s driving me insane!
