Its not really a surprise that i have yet again been woken by the beast with a couple of nasty attacks this morning. The first attacks wasn’t too bad and i managed to get back to sleep as it was only 1.30am but the second attack, at 3am, was one that reminded me how painful these attacks can be. Again i just burst into a cold sweat and my clothes were soaked there was that much coming off me and although i took my injection it still managed to over power it for about 30 minuets before the injection took hold properly and aborted the attack. It has now left me with a very sore neck and a really bad back.
I am becoming more and more convinced every day that my back problem is down to what ever is going on with the nerves as i can actually feel the nerves swelling up in the neck and at the top and bottom of the spine. Its a strange feeling like you have a piece of elastic stretched between two points causing pressure and uncomfort and not to mention a lot of pain. When the back is really bad, like this morning, i get strange weakness in both arms and cant hold them up for long periods of time and have to drop them by my side so to rest the shoulders and the upper arms where the ache and pains come from. the same goes for my legs when the aches, pains and weakness comes all i can do is sit and rest them for a short while and wait for the strength to come back.
With all the strange things going on with my walking and my legs feeling like lead i am starting to feel really run down. When i walk up to the chemist i get some strange things happen like my bum goes completely numb for around 10 – 30 minuets and then eventually comes back to life. The same happens with my legs and if it happens when i am walking it becomes difficult to take a step and i have to stop somewhere and sit down for a while until the numbness and pins and needles stop and life returns to my legs so that i continue my journey. one thing is for sure is that i am getting worst as time goes on and i can’t wait until i get my blood results to see if anything shows up and maybe get some answers.
Thanks to this personal blog i am able to look back over the time line and see how i have been coping and how things have steadily become worst. the improvement in my head attacks seems to have stopped and at the moment are no worst than they were but also no better. This is down to the failure of the Verapamil treatment and the allergic reaction i had to the tablets. My bowls are now all messed up due to what happened and i now suffer with bad IBS. My appointment with the specialist had been delayed yet again as i mentioned in an earlier post. I have tried to chase it up but every time i ring there is no one in at his office so i have left numerous messages on his secretary's telephone asking for them to get in touch with me urgently as i am suffering but they still haven’t called me back.
With the weather being so unpredictable at the moment i know i am in for a rough time with my head and the attacks as they have started to become stronger than the ones i was having during the summer. For the first time in a long while i woke with the cold band feeling around the top of the head witch means the temperature is starting to drop during the night causing the top of my head to get cold and setting off the attacks. I am really dreading winter and what it has in store for me. i don’t know if i can go through all the pain and agony again as last winter was bad enough and i had help with medication towards the end and it still didn’t stop the attacks. i am praying the hospital pulls its fingers out soon and i get my appointment so at least we can try another medication to see if it helps with the attacks and help me get through the winter period.
