The Beast is back with vengeance as this morning i had one of the strongest and biggest attacks i have had to date. Not only did i pass out from it but found myself coming round laid on the floor with a pile of what i can only assume is bile or acid from my stomach as i can feel burning in the back of the mouth and a pile of sick on the floor where i was laid out cold. The attack started from behind the eye and shot over the head as usual but i noticed that it was a lot stronger than normal and felt quite light headed and sickly and as i moved to try and ride out the pain it was lights out. When i came round i was on the floor with a pile of vomit near my head. So i can only assume that i was sick when unconscious.
The pain i have been getting in my back muscles and up and down the spine is now constant and the pains i thought were wind at the top of the back are actually muscles cramping every now and again causing me pain and uncomfort. I have tried everything to help ease the pain by resting and taking it easy. After returning from my fishing trip on Saturday i decided to spend my time resting al the muscles and try and take things easy. Unfortunately i have run out of my Imigran Injections that help to abort the attacks when they build so for the last couple of days all i can do is ride them out and hope for the best. I have had a further 3 big attacks this morning and can feel more building as i sit and type.
Its times like this i actually wonder is there anything anyone can do to help me or am i going to have to be like this or worst for the rest of my life or until i have one attack too many and i wont come round from the last attack i have to endure? It’s a scary thought having these attacks all the time and not knowing whether it could actually kill you or not. No one seems to know as it is such a rare condition. I have tried to chase up my appointments with the only person that does know, my specialist, but can’t seem to get an appointment as they keep on being cancelled or moved.
To me it seems like i am getting worst as time goes on and now the doctor is investigating why i am getting so much trouble with my movement and my back. She has ordered a full lot of bloods done and tested to check for gout, high cholesterol and problems with my joints. All i know is that it’s now becoming painful just to be sitting in one position so i have to constantly change position and stretch my joints and keep them moving each day. I sit there exercising my legs or my arms so that they don't just start aching from being sat still for too long. I am just hoping that all these problems don’t start giving me even more attacks than i am getting already. I am not sure i can cope with it all.
