Sunday, 22 September 2013

Stuck in limbo waiting for appointments ……

After a couple of days having to suffer horrible wind and pain when the wind travels around the internal organs i can honestly say my bowls are slowly getting back to normal. Every now and again i get a little sharp pain over on the right side where i presume my colon is and after the pain has gone i get a feeling of wind build up over on the left side and then comes the uncomfort and pain from the wind until the body decides its ready to release it and then i feel great. This seems to be happening several times per day with the wind trapping all over the body as it builds up and slowly it reaches the bowl area where it can eventually be released. I don’t know why its doing this or what is causing it. There could be several different reasons but the most likely is that i have an impacted colon and that is why it is taking so long to release all that is trapped in the colon. The doctor has given me Laxido drinks that are designed to clear you out and in the case of impacted colon or bowl it is designed to break down the blockage using the body’s natural water and then help to release the blockage. I have been on the drinks for four days now. The first day i used to sashes to start the ball rolling so to speak and would continue this dosage until the blockage started to move.

I was lucky as after the first day the blockage began and my bowls started to open again. I then dropped the dosage down to 1 sashay on the next day and that seemed to do the trick so i will now stay on this dose until all of the blockage is completely removed or passed. The only trouble i have found with these drinks is that they also make the body produce a lot of wind and when you are already suffering from wind you really don’t need anything else adding to the problem. It is now the fourth day and my bowls are still emptying and i am still getting horrible wind build up making it painful and also making me feel bloated all the time. After the scare the doctor gave me about my heart, and the fact that i have extremely high cholesterol levels that need to be brought down as quickly as possible, i have now changed my diet and instead of snacking during the day and only having 1 main meal i have changed to no more snacking and now i will stick to 3 meals per day making sure i have breakfast every morning. It doesn’t sound like a drastic change but for someone who doesn’t normally eat breakfast and hasn’t done for over 10 years its a new habit i now have to start getting into.

Making sure i eat properly and east the right foods has turned into a very important issue and i even have an appointment with the nurse next Thursday to discuss my diet and the fact i have such high cholesterol levels. I think they will put me on a very low if not NO cholesterol diet for some time until my levels drop enough to be in a healthy range. I don’t really mind as it’s about time i sorted my eating out and made sure i am eating the proper foods. i have been so distracted by my head and the attacks all the time that i just haven’t been looking after myself with reference to eating well and making sure i eat the proper foods. I always seem to be snacking on rubbish and chocolate so it wouldn’t surprise me if my sugar levels weren’t all over the place as well as my cholesterol. Maybe this is the kick up the backside i was needing to get myself sorted. I just wish we could get the rest sorted as well. I am still waiting for a date for my next appointment with the specialist to find out what medication is next on the list to try and get my attacks under control and with the winter just around the corner it is more important now than ever before. I am now waiting for the referral for my MRI scan on the back and the spine as to find out what is causing my walking and movement to be so bad. Why my legs are going dead and my bum and why the muscles in my back just stop working every now and again. It’s a very strange feeling when walking up the road and your legs start to go to sleep and its also very scary.

I can’t wait to find out what on earth is going on. I am also waiting for the referral to the back specialist that was referred over a year ago. I did get a letter a few months back saying i was still on the list and they would contact me as soon as a place became available but i haven’t heard anything since. Plus i am now waiting for my next appointment with the CAU team as my last share-care nurse left the profession to follow her heart and specialise in neurology, i really hope she does well as she was brilliant when i was under her care. So at the moment all i can do is wait for all these different appointments and referrals to start happening and then just maybe i will get some answers and finally get myself sorted. All i want is to have some kind of quality of life as at the moment i don;t have any sort of life anymore. Even my fishing was put on hold due to the bowls so i will be grabbing the earliest opportunity and going fishing i don’t care how much pain i am in i will still be going as i need a break from being stuck in all the time. i think that is the worst part of any illness, being stuck indoors unable to go out anywhere as you will end up in pain and agony all the time and when you are ill and in pain you don;t want people seeing you like it so you tend to shut yourself off from the world. I know it is happening i just can’t stop it. Just some sort of normality will be so welcome at the moment, just some sort of life…..