Friday, 29 November 2013

A busy week decorating the flat and fighting the Beast !

I haven’t been able to access the computer the last 4 days as i have been decorating my flat getting it all fresh and ready for Christmas and the New Year. Thankfully my mate John has been here every day do do all the heavy lifting and painting the ceilings as i don’t think i would have been able to get it done with out him as my back wouldn’t last. With his help we have managed to complete 2 rooms fully and prepare all the others in only 4 days. Now considering we are only dong a few hours of painting each day and the rest of the time is taken up with cleaning and preparing the walls to be painted, we have done and excellent job and the living room and bathroom are now complete.

I have to say that John was a god send and has done a cracking job on the painting and preparation work and has worked non stop since he started the project with me at the start of the week. We will now complete the hallway, kitchen and bedroom over the next week and that will be my flat completely re-decorated and feeling fresh and new. It has such an impact on my mind state as waking up to a lovely new living room all freshly decorated and with all new ornaments and curtains and new paintings to go on the wall it looks amazing and completely different. For the first time in a long while i have woken up in the morning with a smile on my face.

It has been well over 12 years since the flat was decorated completely and just over 5 years since i last did the front room so you can imagine it really needed it. The trouble was with my head and the beast causing attacks all the time and my shoulder being bad i would get half way through a job and end up in agony so i would end up leaving it and not finishing it. It was really getting me frustrated that i couldn’t complete decorating my flat and making even more upset seeing the flat get worst and worst as time went on. Eventually i was getting so down because i couldn’t get on with silly jobs and my head kept playing up all the time. Now with the help of John i have been able to do what i wanted and give myself a great Christmas present this year. I now have a freshly decorated flat looking sharp.

I have continued to have attacks over the last week but mainly in the early hours of the morning due to the temperature drop and the cold weather. It seems like it suddenly dropped to freezing and i could feel a cold band around the top of my head. This tells me that i am in for a rough winter again and the attacks will be as bad as they were last year so i am going to have to increase my Pregabilin medication again to get rid of some of the attacks during the day as they have crept back up to 5 or 6 in a day. The trouble with me increasing the medication it means i will end up with bowel problems and wind again as well as all the back pains and kidney pains. I am not looking forwards to it. Maybe if i just increase a little it might not be so bad so i will just have to take it slowly and see what happens.

I am still waiting for my appointment to the specialist so we can sort out a different drugs to help me manage the beast and hopefully reduce or stop the attacks from happening. I can’t see the appointment being before Christmas or the New Year now as its too late to book one. Lets hope they will get me in early in the New Year and we can get something sorted. I managed to get to see my normal doctor the other day after waiting 3 weeks for an appointment. Its starting to get really bad in this country trying to get appointments to see your doctors.

The NHS seems to be going down hill again and the doctors are constantly over worked, under staffed and busy. So when you do actually see them you only manage a maximum of 15 minuets and then its all over till you can see them again and trying to tell them everything you need to in 15 minuets is almost impossible. When i went to see my doctor i brought her up to date as to what was going on. how my attacks had become worst, how i got on at the hospital and some other items and by the time i stopped talking it was time to go. She didn’t even have time to explain the medication she was giving me and told me to read up the information leaflet (witch you should do anyway) and make sure if i have any side effects i was to stop taking the medication and reduce the Pregabilin again.

At least the amount of medication has been reduced and i don’t have to take so many different tablets for my stomach and back etc. Thank god as i was starting to rattle when i moved about i was taking so much medication. It’s crazy how much medication you can take and end up taking if not careful. You end up having to take medication just to cancel out side effects of some other meds that you are taking so end up taking more and more and more…. where does it stop!