Another weekend of hell on earth with attacks starting from early hours in the morning and continuing to attacks right through the day till late evening. So far i am averaging from 2 to 6 attacks per day with a break every now and again lasting no longer than 3 days in a row. This is how it was for me the last winter but i was getting up to 10 attacks in a day and the breaks would be very rare. I am hoping that the medication i am already on will stop them increasing in number too much and i won’t have to go through so many nasty attacks as i did last year and the year before but with out the extra help the Pregabilin was giving me i am not sure how i am going to react to the extreme cold weather. I am now down to 150mgs in the morning and 200mgs at night witch is a big difference from 300 morning and night. The decrease in the medication was done gradually so i didn’t feel the withdrawals as bad as i normally would but still had a few nights where my legs were just cramping up due to me dropping the dose. I can only imagine what i would have to go through to come off the medication completely.
I am hoping it doesn’t come to that and i will be able to keep a small dose of the Pregabilin going when i find out what other medication the specialist has in mind for me to try. At the moment i would welcome anything as any kind of help to keep the beast at bay and the attacks from appearing is very welcome. I am even scared to go out just lately as the attacks haven’t only effected the side of my head and face but also down the left side of my back behind my shoulder blade and across the front of my chest towards the heart. I did try and go fishing on Friday but ended up coming back home after about 2 hours as i wasn’t feeling too clever and the head was playing up something rotten. Then when i got back into the warmth and changed from my fishing gear into something comfortable and tried to relax it just set off some huge attacks that even over powered my injection as it sometimes does and left me in absolute agony for the rest of the night.
Over the weekend i managed to have a lazy one and stayed in all the time not even going out of the flat to the shops as i had everything in that i needed. But even though i had stayed in the warm and dry i still ended up getting attacks in the early hours. Even if i make sure the heating is on and the flat is nice and warm i am still getting the attacks from the beast at 3 am in the morning and don’t know what i can do to stop it from happening. Sometimes i even go to bed with a scarf around my neck so if the cold does try and get to me i can just wrap the scarf up around my neck and head and keep it warm. It has worked a couple of times but i have also had a few occasions where it didn’t make one bit of difference and ended up in agony.
I have to admit that this year seems to have flown passed and it is almost Christmas already. It only seems like yesterday i was starting my fishing challenge and trying to get it up and running on the internet. I am happy to say that with over 12,000 visitors to the web site in under a year i am really made up and can’t wait until the new year and the new fishing season. I will still try and get a bit of Winter Carp fishing in if i can this year and the start of next year but i think i am now going to concentrate on making some fishing videos for novice fishermen who wish to take up the sport and want to do it as cheaply as possible. I will make some instructional videos as to how i started up into the Carp fishing side of things and how i managed to get all my gear together as cheaply as i could. This should keep me busy for a while and maybe even take my mind of the attacks all the time. Anything that can help you manage the pain or help you to forget about your illness is a blessing.
