Another day where i have been woken by the beast. At least it wasn’t a full blown attack and was only the pressure on the left side of the head that was playing up. “The shadow feeling”, as other CH sufferers describe it, is a really annoying feeling of pressure pushing down on the left side of the head and face. Mine was so strong this morning it woke me a couple of times, firstly at around 5 am where i just thought about getting up but was just too tired and ended up falling back to sleep. then again at 6.30am and then finally at 7.20am where i just decided to finally get up out of my pit and face the new day.
For the last few days i have been having murder with my nerve especially in the back area, For some reason it seems to be spreading from the head down through the neck and into my back and is now reaching as far as the bottom of my back in the middle of the spine. When it plays up it feels like i have a bit of elastic stretched from the back of my head down to the bottom of my spine and with each movement it pulls along this line causing me discomfort and even pain. As the weather has started to get colder the nerve has started to play up more.
Its not helping that i have all the problems with the bowels and wind all the time as i am doing a reduction in the amount of Pregabilin i take each day to see if it is the medication causing all these problems and of course with the reduction in medication comes more attacks from the beast. The only thing i can do for now it stop the decrease and start to increase it again to stop the amount of attacks i am getting during a day. So far it hasn’t been bad so i haven’t needed to go back up on my medication but i am sure its about to kick of as i can feel it playing up more and more each day.
The hospital rang me yesterday witch was a massive shock as they don’t normally do that, well not in my case anyhow, and have confirmed my appointment with the chronic pain clinic on Monday at 2.15pm. I really can’t wait as it means its the start of the investigations into the pains i am getting up and down my back all the time and also the problems i get when walking and my legs turning to lead all the time and going numb at the most inappropriate times. Lets hope they will find some answers soon as i just can’t go on like this for much longer. I feel like all my energy is drained and i am in constant agony and discomfort all the time. I have forgotten what its like to have a day with no pain at all.
