Another painful weekend to chalk up with quite a few visits from the Beast and attacks so painful i can’t even begin to describe. With the pain now spreading down the back and across the front of the chest it is starting to really worry me as i feel like the attacks are getting stronger, if that’s at all possible, and they are lasting longer than normal. Even with the injections to abort the attacks they are trying to over power the injections and i fear eventually they will as i have had a few that have just been way too strong for the injection to have any affect and i fear they will all end up this way if i don’t do something soon.
I have two choices, wait for the doctor or the specialist to see me, witch looks like it won’t be until the new year now so i have to go through a painful Christmas. The other option is to go up on my Pregabilin medication again and put up with the side effects. I don’t know if i can go through all that again with my bowels and constipation getting so bad. If it wasn’t for that and the amount of pain i get in the back and muscles with it making it painful just to walk about. I don’t know if i can go through all that.
Even with the reduction in my medication making this better and less uncomfortable, plus i don’t get all the problems with wind and pain in my back, i am still finding i have days where i find it very difficult to move about or walk. This i down to the attacks it seems. When i have a big attack, for the rest of the day, if i try and walk up hill to the shops my legs hurt like hell and the muscles really ache. I also become out of breath very quickly when trying to walk to places. This has been worrying me for the last few days so i will have to take it up with the doctors. Its not all the time and only when i am really bad with attacks but it makes every thing else hard to do during the day making me unable to get on with things in between attacks.
Thankfully i have an appointment with my doctor tomorrow so she can catch up with everything that has been happening with me. I wanted to see her 4 weeks ago or just after i had my appointment at the hospital with the chronic pain clinic but she has been so busy i have had to wait patiently. Even though i have been in a lot of pain i can no longer class it as an emergency now i have a diagnosis for the condition. It seems like once diagnosed you go back into the waiting game once again.
The last time i was in so much pain that lasted for over 6 hours i was rushed to hospital as the ambulance saw e in such a state they didn’t know what to do. When i was taken in to hospital and they saw my notes and diagnosis i was placed in a dark room for an hour with oxygen and a couple of Paracetamol and then told to go home as there is nothing they can do for me and to contact my specialist as soon as i could. The trouble is it can take up to 6 months for the next appointment with the specialist so basically there is sod all they can do and you have to suffer in pain. Why someone should have to suffer in this day and age is beyond me but that’s how it is i am afraid and that’s something i just have to accept.
